been on the back burner a bit

[angeladale]

Computer been on the blink for months , still trying to sort out techno glitches which are many in this household !

Stopped Pembrolizumab trial in April after toxicity issues , which was a pity because all had been going so well .

Whilst some disease is stable , I now have " significant growth " in my lower pelvis and have been put on tablet form of low dose Cyclophosamide . This is a drug I know well because husband has had it intravenously for Vasculitis .

Hopefully , the dose will keep the buggers in check for a little while whilst something else comes along . Should you want to read my trail , I wrote about Cyclophosamide two years ago ! Still . a shock to find myself on it . I am still guns blazing here , but do feel somewhat wobbly . Stiff coffee will put me right .

So , has anyone else been on this ? Anecdotes anyone ?

Still here after nearly after 7 years since diagnosis , 5 lots of chemo ( for newbies who dont know me ) , and still paddling upstream hard ....

But , this time I have taken it badly ....will pull through though : and whereis that coffee ?

Best wishes to all as usual xx

[chrissapam]

love your tenacity Angela....long life is possible(!) Try to enjoy....love Chris xx

[angeladale in reply to chrissapam]

Thank you . Coffee arrived , feel better !

[Katmal-UK]

All we can do is keep going, coffee in hand (or in my case tea). Big hug. Kathy xx

[January-2016-UK]

Hello Angela, I've been wondering how you were getting on after your "holiday" from treatment over the summer.

Good luck with the low dose Cyclophosamide and fingers crossed a trial turns up at just the right time.

Coffee, did you say? I'll drink to that. Espresso, dark and strong.

Take care, all the best!

Helen

[angeladale]

Yes , I was supposed to see you on Monday , I think , but was feeling ugh .

I hope you are over the cough/ cold and having lots of honey from your bees ! I am sure I will see you soon xx

[January-2016-UK in reply to angeladale]

Not to worry, I was there on Tuesday. Cough / cold had nearly gone but has reared it's head again following the latest infusion. A week off now, so I'm hoping for good things.

Take care!

[Hidden]

Hi Angela

I was on Carbo/cyclophosphamide/ Avastin in 2016 but my bloods were very low on this combination do he discontinued cyclo and Avastin.

Juliet

[Sisafighter]

I'm sorry for your continued battles. My sister had to stop her Keytruda/Listeria trial due to disease progression. Now she is on to treatment #5-6:Taxol and Avastin.

[angeladale]

Yes , it does feel like a battle ....although I am never very sure about the war analogy !

Some one said ," My body is the Battleground , " and that's very true !

Thank you for letting me know about Taxol /Avastin ....something for me to throw at The Prof ?

Airwaves hugs to all .

[mummybear59]

Good to hear from you Angela. I hope the cyclophosamide keeps things stable for a while. Sending hugs. X

[angeladale in reply to mummybear59]

Oh thank you ; how are you doing ? x

[mummybear59 in reply to angeladale]

I'm doing ok Angela. I've been on Olaparib (parp inhibitor) since last August and been well but it's looking like I'll be back on chemo in the new year, as my Ca125 has increased every month since April. X

[angeladale]

Oh gosh , Wonderful that you've been on the trial but a bugger to be back on chemo .

The pembro trail was a doddle really until I went into toxic shock ! It was working and I had to come off it ....so no chemo since August 2015 ....it's quite a shock to be back on it , albeit , low dose . I have now got my head around it and am being slow in this cold weather , staying in and doing chores : therapeutic cleaning .

Hope you get a plan soon . Keep chin up ! Only way .