Pituitary gland on the blink

All during chemo my thyroid hormone levels crazy. I have been on thyroxine for 15 years. Now, a year & a half after finishing chemo, my TSH is 28 (way off the chart) but t4 normal at 15. Very strange.

So, doc wants a scan to see if there is a tumour in pituitary gland, rarely malignant but still needs to be sorted he says. Has this happened to anyone else?

10 Replies

  • Hello Sherrm

    This is a site for Ovarian Cancer ....are your symptoms to do with OC? If not you may be in the wrong place...have a check on health unlocked for your condition. If you are talking about OC let us know..the group has lots of experience! x

  • Yes, I have OC 3C. This is 17 months post chemo. Just asking if anyone here has had a pituitary gland prob.

    Have posted on thyroid forum too, a few have more info.


  • Hi Sherrym, I am on levothyroxine for an under active thyroid diagnosed a year before my ovarian cancer (stage 3b). Can I ask were your thyroid levels checked by the hospital each time you had chemo? Mine were never mentioned to me at all. I did pile on a ?lot of weight though, I know the steroids gave me the munchies but am now wondering if it could in part be down to the thyroid. Thanks . Ann xx

  • Every time, but they were all over the place & since I was doing so well my dose was left the same

  • I had my thyroid gland taken out due to cancer when i was in my twenties. I have been on l-thyroxine for over 30 years. My TSH jumps all over the place. Going from hypo- to hyper in a few months. I am constantly adjusting my dose. My doc says this is normal as we age, not just from the chemo. hope it helps.

    Xx Carol

  • My doc wants scan of pituitary gland so I guess I will see what he says afterwards. I feel fine & frankly, fifty times more worried my ovarian cancer will come back!!

  • Isn't that the truth. What seemed to worry us before is way down the list from cancer.

    Keep us posted. Xx Carol

  • Will do after scan x

  • Hi same thing with me however my TSH is 0.01 and my T3 was st 12, I've just had a thyroid uptake scan and it is showing a toxic nodule on left lobe, I am now on anti thyroid medication and waiting to see a thyroid specialist, this was six months post chemo.

    Ellsey xx

  • Oh God! Poor you, mine appears to be a pituitary gland misfunction. We will see

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