Since my last update I've had my IP port removed and my ileostomy reversed.
The IP port removal hurt way moe than i expected it to. Felt a bit like I'd been kicked in the ribs by a small horse and very sore for a week. Now that's healed, so i can sleep on my side. Small favors!
The ileostomy reversal was by far the easiest surgery recovery I've ever had. Hardly any pain and once the plumbing kicked in again it's been working like a regular champ ever since. Thank goodness, because reading experiences on the internet had me terrified I'd end up with yet another complication.
And now... my mini meltdown. I've been trying really hard to be ok with this, but it's extremely likely I'll lose all my hair again. Third time in a year... and this time for a year. I had my first monthly dose of monthly maintenance taxol today. Being alive is more important than being bald, but I'm just so tired of - looking - sick. Wigs are hot and itchy and I hate hats and such. My hair just got back to a very short pixie... and I get to say goodbye all over again. So much has happened, and it's this that had me sniveling in the car. Ugh!
At least I'll get another year without shaving my legs...
Written by
mogwaicat
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You have every right to sniveling. That is a lot to deal with in a years time for anyone. Keeping you in my thoughts and hope that tomorrow will be a better day.
I'm jealous about the leg shaving although may be joining you shortly. As for hair I so understand how difficult that is. Although I've only ever had carboplatin so no hair loss my roots are upsetting me every time I look in the mirror. Maybe we should have a wig party
Hi.Lily Anne.Im on Carbo only.I took a chance on high lighting my roots.Didnt want the gray hair..Three treatments and no hair loss at all.I was told we may thin,but so far, im good.She doesnt touch the scalp.Im really happy about the break this time,but I know I will lose it again...Ill take treatment as it comes,but mentally/emotionally needed the break.💙💙Lynn
I'm tempted just to go to the hairdresser. She uses an organic dye on my roots and highlights on the rest. Biggest risk is it will turn green or fall out lol
This is actual one many wigs I own, knowing I will be back to..but not too soon,I hope.I have a scan next week..A little nervous, no alot nervous whether treatment is working..Crossing my fingers...Hoping for the best.I feel for you,I really do.People say I have awesome wigs, its not the same as losing our own hair/two/three times.Im teary thinking about it..But we have to be strong and fight this aweful disease....Thinking about you...
Oh Mog..... I completely understand your feelings. It's bad enough having to fight for our lives, but to then also look like sick persons is just the straw that breaks my spirit! It's one thing to get treatment in a quiet, private fashion, but to have to walk around with no hair, brows or lashes is just too much! I bought some really cute, soft unisex regular slouchy hats that my kids wear and learned to love them. Since the weather here in Seattle is usually cool and rainy I could get away with wearing those beanies for 9 months without really looking odd. I am sending you a virtual hug in solidarity. At least you're here to get bent out of shape about it!
Chin up lovely. Do they have the cold cap system in the US? I used it and only lost about half my hair. I finished chemo mid July and I had to have my hair cut yesterday. I'm now with a pixie cut and wig free. It's worth the discomfort.
I do so understand your feelings, I only lost all mine the once but that was fairly traumatic for me although I loved my wigs and not shaving the legs etc was a bonus. Have a good cry if you want, you're allowed, then it's chin up and face the world, you're a strong beautiful lady and you can do this love. ❤️Xx Jane
Hi.You do have every right to be upset.I lost my hair twice.Im on Carbo only this time,so no hair loss.I really needed the break.I know I will lose it again when Carbo dosent work and the new drugs I will receive in the future.But I will take the break for now.I know I have fantastic wigs,but losing your hair three times is hard.Take care.Best of luck with treatment.💙💙Lynn
Oh i dont blame you having a mini meltdown. I will probably be loosing my hair again. It is a bummer. Slightly doable first time then manage second time. Really fed up third time. We are with you all the way.
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I am stuck with the b#$¥ard port still
Very slow rising ca125?
Getting a port flush at a different hospital?
Power Ports
