recurrence - weekly taxol

[2mini2]

Hi

Im being told I will likely receive weekly taxol for my first recurrence (6 months after completing front line)

Has anyone else had this and how did they get on?

Did you achieve disease free status and if so for how long?

Did you loose your hair?

[Jo2305]

Hi

I'm on weekly taxol for 2nd recurrence - I had my 14th out of 18 yesterday and currently I'm not getting any side effects whatsoever, I feel ok. I am just 45 and fairly fit and healthy otherwise generally so that may help. I am using the cold cap and have had no hair loss at all which is fab so I don't even have to remind myself with a bald head when I look in the mirror. It's very cold and not very comfortable but been so worth it in my experience. As for disease free well my consultant told me that he's hoping to achieve 'no evidence of disease to the eye on ct scan and I'm hoping for a longer remission this time but that we never know unfortunately. (Had 2 years remission from end of chemo 2013 April to 2015 June, then only 2015 December to 2016 December 2nd time).

Wishing you all the best with your weekly taxol, it's a long slog but hopefully will be worth it for both of us afterwards!

Take care

Jo xx

[Lucidalil in reply to Jo2305]

Hi Jo

it was great to read your post, I start weekly taxol on Monday as part of a new trial and was wondering about the side effects and whether it was worth using a cold cap.

Although results are going to vary from person to person I may now give it a go having lost my hair twice before with chemo. They do look much better now than the one I used in 1999 - instant brain freeze springs to mind lol.

I had 2.5 years remission first time then only 4 months 2nd time.

Wishing you all the best and let's hope this hits it over the head for us all👍

Carolyn 😀

[Di16]

I had weekly Taxol with little in the way of side effects. I had a bit of numbness in my fingers, but it was put-upable (is that a word?) I already had neuropathy in my feet. I didn't use the cold cap, & lost some of my hair, so it thinned, but did not all go. I found it quite an easy chemo. Di

[Lucidalil in reply to Di16]

hi Di,

Again it's so good to hear that there seem to be few side effects with taxol. I found my last regime of carbo caelyx a bit rough at times but yet I sailed through carbo/taxol. I haven't had any numbness in hands and feet yet so fingers crossed .

Best wishes

Carolyn 😀