My Ovacome

Weekly taxol

Hi ladies , here's a question. I have stage 4 oc , diagnosed about 10 months ago.

March to June 3 lots of carbo taxol , unfortunately did not work for me. Passed to palliative care , as I didn't want to be binned off , onc agreed to see me again September. I'd had a good summer and when he saw me , he was delighted with how well I Iooked (compared to June) , I had a further scan and then November to January, 3 lots of carbo caelyx , unfortunately that hasn't worked either . Loads of fluid back and just home from having 5 litres drained today - feeling comfy.

Have now been offered 12 weeks of taxol alone , has anyone had this please. Back to onc next week to discuss in detail.

I don't post often but read every day and am so loving the positivity of all you ladies and gents.

I have a positive attitude and will keep fighting , every day makes a difference and Christmas was an absolute bonus. Truly blessed with family and friends too , all the support we get is amazing.

Thanks for your help x

11 Replies
oldestnewest

Hi there, im stage 4 too, haven't had taxol alone,on 2nd line gem/carbo at present. But just wanted to say good luck and as hard as it is try and keep your positive attitude, I believe that it really does help. Stay strong, best wishes xxx

2 likes
Reply

Thanks , good luck on your journey.

1 like
Reply

Hi I'm stage 4 and have been on exactly the regime you've been on, I also had weekly taxol last year and tolerated it quite well, I got very tired about half way through which made me a bit emotional.

I managed to work through the chemo though, I've been on tamoxifen for a few months now but onc has told be I need to go back on weekly chemo starting in a few weeks.

Hope it all goes well and you don't have too many side effects

Karen

Xx

1 like
Reply

Thanks for that , it's great to know. Good luck x

2 likes
Reply

So sorry that we all have to be going through this nightmare. I've never had fluids drained and am not familiar with it. i have stage 3 C Ovarian and going to be starting Rubrcar a pill chemo. Twice a day, nervous but no choice. Keep your chin up!

1 like
Reply

I've had weekly taxol twice over the years and both times it's been quite effective. Also more tolerable than they others. Hope it works for you

Love Francesca xx

Reply

I am on weekly taxol and it's much the easiest one I've been on. I had a CT scan Tuesday and will find out whether it's working when I see the doc in a couple of weeks. Wednesday I did yoga am, lunch out with friend, Spanish class in the afternoon and an evening meeting. I'm halfway through as of yesterday and feel fine most of the time. A bit fatigued Sat but still up and doing stuff (I have the infusion on Wednesdays).

Reply

Sorry infusion Thursdays. It's a bit of a tie as it takes most of the day due to the cold cap. I take ice for my hands to try to avoid neuropathy as I have a four ply jumper to finish (for an 80th birthday last September!) and a blanket to counteract the cold! better than the hospital ones.

Reply

Lucky you! Wow

Reply

Hello lindy-hop

I'm on 18 sessions of taxol. I am half way through. I found the first six ok, relatively side effects free except for some fatigue. Then my nails, hands and feet took on a brown tinge and some discomfort. Moisturise frequently to prevent splitting etc. The neuropathy in toes and fingers can be uncomfortable. Be sure to tell Oncologist if it becomes a concern as s/he might reduce dosage. Hair loss all over (in my case), yet some fluff on head! Nausea can increase with the amount of sessions. Fatigue is frequent.

You did ask!😷

I hope you have a positive result at the end.

Patricia1517

Reply

Been there done that as well with all the same drugs, stage 4 ovarian palliative care been drained. I am on a clinical trial now instead of all that other stuff... got sick of it. If you look through your report on your tumor they may be able to match you with a particular trial. I have the ntrk1 genetic rearrangement or mutation or whatever they call it. There's a drug out there that I just started on recently called entrectinib that targets this mutation. So far the only side effect is my throat feels a little numb but otherwise I feel good. It's important to know the mutations and different issues in your tumor report. I think the majority of oncologist do the same old protocol, try this and that, and let's face it if you are stage 4 nothing really works for a long for most of us. So I am finally hopeful. Get your report dive into it and see if you can match anything up with your genetic mutations. You've got them trust me.

Reply

You may also like...