Weekly taxol

Hi ladies , here's a question. I have stage 4 oc , diagnosed about 10 months ago.

March to June 3 lots of carbo taxol , unfortunately did not work for me. Passed to palliative care , as I didn't want to be binned off , onc agreed to see me again September. I'd had a good summer and when he saw me , he was delighted with how well I Iooked (compared to June) , I had a further scan and then November to January, 3 lots of carbo caelyx , unfortunately that hasn't worked either . Loads of fluid back and just home from having 5 litres drained today - feeling comfy.

Have now been offered 12 weeks of taxol alone , has anyone had this please. Back to onc next week to discuss in detail.

I don't post often but read every day and am so loving the positivity of all you ladies and gents.

I have a positive attitude and will keep fighting , every day makes a difference and Christmas was an absolute bonus. Truly blessed with family and friends too , all the support we get is amazing.

Thanks for your help x

[sallychiverton]

Hi there, im stage 4 too, haven't had taxol alone,on 2nd line gem/carbo at present. But just wanted to say good luck and as hard as it is try and keep your positive attitude, I believe that it really does help. Stay strong, best wishes xxx

[Hidden in reply to sallychiverton]

Thanks , good luck on your journey.

[Hidden]

Hi I'm stage 4 and have been on exactly the regime you've been on, I also had weekly taxol last year and tolerated it quite well, I got very tired about half way through which made me a bit emotional.

I managed to work through the chemo though, I've been on tamoxifen for a few months now but onc has told be I need to go back on weekly chemo starting in a few weeks.

Hope it all goes well and you don't have too many side effects

Karen

Xx

[Hidden in reply to Hidden]

Thanks for that , it's great to know. Good luck x

[Carolelynn]

So sorry that we all have to be going through this nightmare. I've never had fluids drained and am not familiar with it. i have stage 3 C Ovarian and going to be starting Rubrcar a pill chemo. Twice a day, nervous but no choice. Keep your chin up!

[francescahannah]

I've had weekly taxol twice over the years and both times it's been quite effective. Also more tolerable than they others. Hope it works for you

Love Francesca xx

[LesleyGreengran]

I am on weekly taxol and it's much the easiest one I've been on. I had a CT scan Tuesday and will find out whether it's working when I see the doc in a couple of weeks. Wednesday I did yoga am, lunch out with friend, Spanish class in the afternoon and an evening meeting. I'm halfway through as of yesterday and feel fine most of the time. A bit fatigued Sat but still up and doing stuff (I have the infusion on Wednesdays).

[LesleyGreengran in reply to LesleyGreengran]

Sorry infusion Thursdays. It's a bit of a tie as it takes most of the day due to the cold cap. I take ice for my hands to try to avoid neuropathy as I have a four ply jumper to finish (for an 80th birthday last September!) and a blanket to counteract the cold! better than the hospital ones.

[Sherryross in reply to LesleyGreengran]

Lucky you! Wow

[Hidden]

Hello lindy-hop

I'm on 18 sessions of taxol. I am half way through. I found the first six ok, relatively side effects free except for some fatigue. Then my nails, hands and feet took on a brown tinge and some discomfort. Moisturise frequently to prevent splitting etc. The neuropathy in toes and fingers can be uncomfortable. Be sure to tell Oncologist if it becomes a concern as s/he might reduce dosage. Hair loss all over (in my case), yet some fluff on head! Nausea can increase with the amount of sessions. Fatigue is frequent.

You did ask!😷

I hope you have a positive result at the end.

Patricia1517

[Sherryross]

Been there done that as well with all the same drugs, stage 4 ovarian palliative care been drained. I am on a clinical trial now instead of all that other stuff... got sick of it. If you look through your report on your tumor they may be able to match you with a particular trial. I have the ntrk1 genetic rearrangement or mutation or whatever they call it. There's a drug out there that I just started on recently called entrectinib that targets this mutation. So far the only side effect is my throat feels a little numb but otherwise I feel good. It's important to know the mutations and different issues in your tumor report. I think the majority of oncologist do the same old protocol, try this and that, and let's face it if you are stage 4 nothing really works for a long for most of us. So I am finally hopeful. Get your report dive into it and see if you can match anything up with your genetic mutations. You've got them trust me.