My mum was diagnosed with IIIC ovarian carcinosarcoma in June 2013. Various chemo and surgery later, she was clear. In October 2015 it returned, and she did further chemo then underwent the HIPEC surgery in March 2016.
Now, May 2017, her CA125 is elevated to 118 (up from 7 at her last test 6 months ago) and the PET/CT scan showed deposits on the peritoneal lining. It's heartbreaking, especially after the intensity of the HIPEC - we'd been really hoping that'd be the end of it. But she's started chemo again and we've just gotta get on with it, she's historically responded very well to it so we're hoping the case remains the same.
What's more concerning is her Alpha Feto Protein levels. These went from 500 at the first blood test less than two weeks ago, to 4000 today. But PET/CT scan showed nothing on the liver, lung or colon, which according to my limited info are what an elevated AFP can indicate. Her liver function tests were also perfect and she's actually physically feeling great.
Has anyone gone through anything similar and can shed any light on this? The levels are increasing at an alarming rate and her oncologist actually said "I don't know what this is". She's going for a second opinion of course as well as a liver specialist but I'm struggling with the wait, so would appreciate any advice at all from anyone here. I'm terrified, were all so scared and confused 😞
Thank you all in advance.