Firstly I would like to say a big thank you to all of you lovely ladies who replied to my previous post. It meant that I was able to take a list of questions with me to the clinical trials team today. My clinical trials nurse was unable to answer a number of them so I got to see" the big cheese," my consultant, who was absolutely lovely and really helpful.
Apparently I am able to fly but I should be aware that any air travel carries risks after chemo. She suggested i avoid long haul and that I try to get up and walk about. The sun sensitivity and blisters are linked to the chemo and not to the Avastin. The side effects of the chemo can apparently last for up to a year. She also thinks that my peripheral neuropathy is linked to the chemo.
There was no pressure to continue with the trial but my consultant felt that I had already been through the worst with the combined chemo and avastin. I have decided to give the maintenance dose a go and make my decision after I've had a few doses of Avastin on its own.
Thanks to you lovely Ladies I felt that I now had the information to make an informed choice. I am very grateful.