Avelumab trial

[Natalies26]

Hi there, am new to this site, but was wondering if anyone is currently on a trial for avelumab and how they were getting on with it?

[January-2016-UK]

Hello Natalie and welcome to our site. You'll find lots of helpful friends here who can offer great advice

We've exchanged private messages so you will know I am doing very well on this trial.

I forgot to ask how many doses your mother has had.

All the best!

[Natalies26 in reply to January-2016-UK]

Hi Helen, glad to here the trial is going well for you, mums had 5 doses so far, 3 with the combined and 2 with just the avelumab on its on, are your days long and drawn out too? Though it's worth it to be getting such a new drug, she had a scan after 5 weeks it showed some small reductions and some other still stable and a little bigger, but I here with immunotherapy it can take longer to show on scans? Take care, Natalie xx

[Cropcrop]

Hi Natalie, welcome to the site none of us want to belong to but are very glad we do. I don't have any experience of avelumab so can't help or advise but just wanted to say hello. ❤️Xx Jane

[Natalies26 in reply to Cropcrop]

Hi jane, thank you for your message, it's so refreshing to read other people's stories and how everyone is getting on, am glad I stumbled across this sight now Natalie xx

[Hidden]

Hi Natalie, just popping in to say Hello and welcome. I have not met any one so far on this trial here in Ireland but hopefully we will hear about it as time goes on, I hope your Mum is doing okay.

[Natalies26]

Hi there, what trial are you on in Ireland? Reading your history sounds very similar to mum, it's really reassuring reading other people's posts and history's, I guess the thing with trials is that it's a bit into the unknown, but so far so good, hope it's going well for you, Natalie xx