Anyone had a uretetic stent? I had one a few days ago as there was an obstruction which was causing me kidney problems. I am finding it really uncomfortable and quite depressing. Will it get better? Can anyone give me a glimmer of hope?
Sorry not had this experience so can't help, just wanted to send you big hugs, hope you feel better soon ❤xx Jane
Hello, I have no experience of them but perhaps it may be an idea to give your CNS a ring as there may be something not quite right as I would have thought they shouldn't make you feel uncomfortable unless you were advised that initially would be the case. Hopefully, someone will be on-line soon who has actual experience of this type of stent.
All the best!
I had one following surgery to remove oc from my ureter. Was a bit uncomfortable for a few days and must say I could feel it if I had to bend but it was bearable. I agree you should contact CNS or onc for advice if it doesn't improve.
Thanks yes I will - is CNS specialist nurse? Ive just come through 4th line chemo - my lymph nodes are the problem and all the rest have reduced in size apart from one which has grown and of course it's the one that's causing the problem grrr. I am hoping it will calm down soon but at the moment it's quite uncomfortable. Thanks again Julie
I havent had experience of this either but if the pain or discomfort continues do seek advice from your team, wishing you all the best
Hi I've had two stents now and yes can be uncomfortable for a bit but do check with your CNS or oncologist as sometimes you might have an infection, with stents you are more prone to them. After a while it does settle down and you might feel it a bit but it shouldn't be painful, that's my experience. Wishing you all the best
Thanks Karen I will see how it goes over the weekend and give them a call on Monday Julie x
I've got one and it was uncomfortable in some positions at first but now I don't notice it. Forget it's there most of the time, though I try to keep drinking plenty. But I agree that it would be a good idea to contact your team to check it's ok.
Thanks I will Jx
I had those stents fitted the day before the surgery, and at my urging removed as soon as possible again after surgery. Found the fitting very painful and was very uncomfortable too.
I'd definitely recommend you check with your CNS whether they sit as intended, and whether there is anything you could be given that relieves your discomfort.
Hope it gets better soon.
Yes i don't blame you! It's difficult really as without it I may well lose the function of the kidney leaving me with only one for future treatments. It is starting to feel slightly better so I am going to give it another couple of days. A course of antibiotics may help. The urologist did say it may take 2-3 weeks to settle just wasn't expecting it to be quite so uncomfortable. Thank you for taking the time to reply jx
Yes I had one after my debulking. Was told I wouldn't feel it so no one listened to me for over 3 months. You may want to ask your dr for some anti spastic pills. They are often blue pills and turn your urine blue as well but they can help some. Here is my post on my experience.
Thanks very much for your response it sounds horrific! Well I am not in as much pain but it is very uncomfortable. I am now on antibiotics and seeing my urologist in a couple of weeks time. I opted for this because I didn't want a drain but I guess if it doesn't settle down that is what I will have to have. I am hoping it does.
I did check out your post - do you take chaga mushrooms? Have they helped?
No I don't take chaga mushrooms... When I hear of possible break thews or a friend has had good results I do try to share such experiences with others.
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