This is my first post so I hope it works. I was first diagnosed in 2014 with stage 3 I had the op and carbo and pacitaxol then this year it all came back again. I’ve had surgery again and am now on carbo and Gem? (I always forget the name of this one) anyway my query is I’ve been told kidney function is not great and I need another minor op to have stents. Just wondering if anyone else has had this and if you can give me any info. I googled the side affects and I’m scared. Many Thanks x
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Twinkle63
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Hi Twinkle, this OC is fun, isn’t it!!! You never know what it’s going to throw at you next. I’m learning to expect the unexpected! I’ve had uretic stents since my first recurrence two years ago. Like you, I was really worried beforehand but the operation is very straightforward compared with the other surgeries associated with OC and most people are in and out of hospital the same day. The process has to be repeated every six to nine months to renew the stents. I was a little sore to begin with but hardly noticed them after that. They don’t make any difference to how I pee. In case you read any of my previous posts, I should mention that I had a very very rare complication the other day when I realised one of the stents was coming out but it didn’t cause any problems or pain. It will be replaced once I’ve finished chemo. In the meantime, my kidney function is being monitored. Do hope you get on ok with your op and try to ignore scary Dr Google. All the best Jo 🌺🌼🌸🌻🌹
Thank you so much for your help. I did send you a longer reply but it seems to has disappeared. I’m new to this and obviously need a bit of practice ! Thank you so much you have really helped me⭐️
I have had stents since my diagnosis in March of 2016 and have had five exchanges. The procedure can be done in clinic with just local anesthesia and takes about 30 minutes. All of my stents have been Double J plastic but this time I got Resonance metal stents because I have had constant UTI's associated with the plastic ones. A biofilm can grow on the plastic that attracts yeast and bacteria. The metal much less so. Everyone is different and you may not be bothered with UTI's. I have had very good luck with the stents and procedures of exchange and most people do...do not feel them at all. Good luck...hope this helps!
Hi Twinkle63 I have a stent in my left urethra. I have a Blockage due to endometriosis and have had a Stent for 15 years with mostly annual replacements. My left kidney isn’t functioning well. What are you scared about in particular and hopefully I can put your mind at ease. After a few days I’m not really aware of the stent, and over time I don’t even remember it’s there. The pain is very manageable and normally goes away after a couple of days. It is more sore than painful. I have it in at least a year. I’ve had my last one for over 2 years as I had knee replacement surgery last year and didn’t get around to changing my stent. I have symptoms now for sure as it desperately needs changing. That is due to happen on Tuesday. I’m normally in and out in a day. Please let me know if you have any other questions. Best wishes, Jan
My mom has OC, unfortunately but I did have two bilateral stents put in a few weeks ago. The beginning was very painful for me and felt like I had a clock ticking in my lower back every time I had to urinate. Within a week or two your body should get accustom to the stents.
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