Is it possible to get ever recurrence ?

[Sofiasomaha]

When first op was optimal and no cancer left, chemo just in case.

Xx

[Hidden]

Yes it is possible to have a recurrence but it is also possible not to have one, we are all individual and react to treatment differently. I hope your chemo will stop any future recurrence

[Lily-Anne]

I had a cyst with cancer cells inside on left ovary. It was removed came back as stage 1C so had a precautionary hysterectomy cervix and omentum removal. Carboplatin single agent mop up. Recurred after 3 years. Now NED after further surgery

LA

[Aniram1973 in reply to Lily-Anne]

Hi Lily-Anne

Were your recurrent symptoms the same as the 1st time? (How did you know you'd recurred?) I was 1c - had total abdominal hysterectomy & bilateral salpingo oophorectomy (plus cervix & omentum) and had 12 weekly treatments of carbo/taxol (mop up) and have ned .

I wondered how it can recur when there's nothing left for it to recur in! 😂

[Daniellafriman in reply to Aniram1973]

My dr told that ALL cancers left behind stem cell ,it cant be cured and cant be destroyed. But it can stay at bay forever.

[Aniram1973 in reply to Daniellafriman]

It really does seem to depend on your doctor . ...mine said "if we're lucky, we'll cure you" but I shared the opinion of your doc ... chemo can't change your dna . ..or can it? ☺

[Daniellafriman in reply to Aniram1973]

Im ned and my dr told that im cured but no-one can YET destroy that stem cell. But I enjoy my cured -self now : D

[Aniram1973 in reply to Daniellafriman]

Works for me Danielle 😀 Long may it continue too xx

[Lily-Anne in reply to Aniram1973]

It recurs in the pelvis usually which is where my new tumour was. I didn't have any symptoms it was picked up at routine appointment, I had just moved to six monthly after three years of three monthly. My CA125 went up to 47, so they took it again it had risen to 102, so had a CT then MRI then PET CT the tumour had attached to the bowel and was in the pelvis so I had 7 hours of surgery and to remove it and to place a stoma. It was a big shock as my cancer was confined to a cyst on the ovary at diagnosis and the doc thought it looked all good for curative.

LA

[Aniram1973 in reply to Lily-Anne]

Wow. I only finished chemo in May - had a check-up in July and don't have another appointment until January. Being 'cut loose' and fending for yourself after being tied to the hospital for so long is quite scary! There doesn't seem to be a one-size fits all treatment plan does there? Were you given any hormone therapies? I've been taking Anastrozole (aromatase inhibitor) since finishing chemo x

[Sherrym in reply to Aniram1973]

I fin chemo last December-my diagnosis June 2015 was stage 3C. I am on 3 monthly checks maybe going to 4 months next year. What stage were u?

[Aniram1973 in reply to Sherrym]

I was 1c x

[Sherrym in reply to Aniram1973]

Ah, hence they allow u 6 months off, Tx

[Lily-Anne in reply to Aniram1973]

No after diagnosis in 2012 as 1C I was NED with a CA level of 7

Recurred in 2015 but no treatment since surgery last November and chemo as currently nothing to treat

LA

[Sunfleury-UK in reply to Lily-Anne]

LA- I thought you had decided against chemo after big first op?? I remember you doing a lot of consideration and with your onc deciding against Taxol- did you do the 6 X Carboplatin mop up? We were similarly 1c and I also had concerns about chemo... Had thought you maybe had the first carbo and then stopped...? Much love Sx

[Lily-Anne in reply to Sunfleury-UK]

Hi. After the TAH and associated bits which they sell as being the best defence against any risk of spread I saw oncologist for chemo. She said it was optional but to have Carboplatin as a mop up. After my first dose I had my appointment and my kidney function had fallen so much I was now CKD3, and my thyroid stopped working. She told me that all of the cancer had been removed and the histology was all clear so no spread. However she also said there was no way to measure the effect of the chemo as there was no disease. When it recurred it showed mixed histology again. The discussion was that my OC was hormone driven and although the risk of recurrence is reduced by removal of ovaries the pituary gland is still producing oestrogen along with being P53 positive. So not necessarily related to a stray cell finding somewhere to sleep awhile. I had three doses of carboplatin this time but was so poorly. They've told me I am in the same position as last time because the tumour was isolated, but personally I'm freaked out by it all and with a pain in my side all the time, despite a clear CT I'm concerned. They tell me pain is normal after major surgery but it's a year this week!

LA xx