My CA125 on diagnosis was 1600. Before starting chemo it had risen to 5000. After first chemo it dropped to 3000. I'm pleased to say that after my second chemo the figure is 414. I'm pleased it's all going in the right direction.
Keep up the fight everyone. Xxxx
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Suzanne333
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Thank you. Yes am feeling good. But sad too though as my mum has been told she's got a 90% chance that she has breast cancer. Been a bit of a shitty year. Xxx
Hi Suzanne , just what neither of you need right now. Sometimes it goes like that, like you just need someone to give you a break! Stay positive. Wishing you and your mum all the very best xx Do let us know how you both get one. Big hug. Kathy xx
My mom, her sister and me were all diagnosed with BC at the same time!!! Even though my mom was 27 years older than me and my Aunt was 30 years older than me. That was 10 years ago. I am still here. My mom recently passed from pneumonia at 89 and my Aunt passed of old age at 88. Good luck to you both! Tesla PS, We do not have the BRCA genes. Obviously we've got something that gives us cancer, no one knows what, yet! Tesla
Suzanne333, We are totally in the dark ages about the actual causes of cancer because there are SO MANY gene mutations that must occur to cause it. I read that there are hundreds of gene mutations relating to breast cancer. My mother's mum died of brain cancer in her early 50's. My mother's other sister died of lung cancer at age 32. I had genetic testing done in 2006 after my breast cancer. At that time, I was told I didn't have "the cancer genes" HOWEVER, in the last 10 years they've learned of additional hereditary cancer syndromes. I am going Tuesday next for updated genetic testing. I bet this time they find something. I'll post the results when I get them. My gyn onc has requested this testing in case my OC comes back, he says genetic testing will tell him which drugs to use "the next time". While I don't plan to relapse, by God, I'm going to be as prepared as I can to fight this horrid disease. Yes, cancer sucks. Have you had genetic testing done? If you do have a genetic cancer, your sister and children should probably consider doing that for themselves.Tesla
I do think it's a lot to do with genetics. I've not had any genetic testing but being as my maternal grandmother and my mum have it, I should look into it.
So many people get cancer I think it's sometimes just pot luck or pot unluck.!!!
I'm just determined to be here for a long time yet despite this diagnosis.
I'm not trying to fight cancer, it's trying to fight me.
Suz333, I'm reading a book right now called "Radical Remission" by Turner. While I prefer more scientific evidence, this is a great read and full of inspirational survival stories. Here's a link from Amazon that can tell you more about the book: amazon.com/Radical-Remissio...
Me too. I just carry on best I can. I do get low especially a week after chemo but then I'm full of beans again. I won't let cancer get the better of me. Xx
That's such a great attitude... I had a bad day yesturday ... I cried because I was so frustrated with myself I was not able to achieve what i set out to do due to chemo legs lol... But like you I picked myself up and got in with what j could do ... Your photo gives me such inspiration you look fabulous xx
Suzanne333, FANTASTIC NEWS!!!! This precipitous drop is actually a sign of what might become a "complete" response, which is the best outcome any of us could ask for!!!! Keep the Faith. Tesla
Hi Tesla. Thank you. I'm so pleased it's all going in the right direction.
Surgery next probably in October . I'm sort of looking forward to it as its another stage out of the way.
Just got to keep going , keep positive where we can - I get very low days . we are all very supportive on this site and it has helped me so much since I joined.
Suz333, the people on this site are wonderful. It's very hard to talk to others who have never experienced the misery of OC-- they want to be compassionate but truly have no idea how soul crushing this disease can be. I want to come to the UK so I can meet everyone. I wish I lived closer so we could meet for tea! Tesla in Seattle
You will have to take in Ireland too Telsa ! Stop off on the way to the UK ! You have become one of our few ambassadors from the U.S. Thank you for sharing your knowledge with us .
Hi MollyO, I've been to Dublin and absolutely loved the place and it's surroundings. We stayed at Clontarf Castle where my husband's company had a meeting. I took a side trip to Powerscourt and fell in love. I intend to visit again. If I do any time soon, I'll let you know!!! Tesla
First of all you look fab. I love the makeup and I wish I looked like that with the no hair look.
Yes. It is a good feeling knowing that CA125 is going down . As you say going in the right direction.
I'm really sorry to hear that your mum has Breast cancer. If there can be any good news about any type of cancer it is that Breast cancer treatment nowadays is very successful . It is mostly found early which is the key to success. As it is the most common there has been a huge amount of research into it. I want to wish you both the very best of luck with future treatments. Take care
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