Ca125 going down. : Third cycle of chemo... - My Ovacome

My Ovacome

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Ca125 going down.

Suzanne333 profile image
38 Replies

Third cycle of chemo yesterday. All went well.

My CA125 on diagnosis was 1600. Before starting chemo it had risen to 5000. After first chemo it dropped to 3000. I'm pleased to say that after my second chemo the figure is 414. I'm pleased it's all going in the right direction.

Keep up the fight everyone. Xxxx

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Suzanne333 profile image
Suzanne333
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38 Replies
Katmal-UK profile image
Katmal-UK

Woohoo Suzanne you must feel so pleased! Lovely pic!

Suzanne333 profile image
Suzanne333 in reply toKatmal-UK

Thank you. Yes am feeling good. But sad too though as my mum has been told she's got a 90% chance that she has breast cancer. Been a bit of a shitty year. Xxx

Katmal-UK profile image
Katmal-UK in reply toSuzanne333

Hi Suzanne , just what neither of you need right now. Sometimes it goes like that, like you just need someone to give you a break! Stay positive. Wishing you and your mum all the very best xx Do let us know how you both get one. Big hug. Kathy xx

Suzanne333 profile image
Suzanne333 in reply toKatmal-UK

Thank you. Yes life goes like that sometimes. Just got to plough through it and still keep positive. I'll help my mum and I know she will be ok. Xx

Tesla_7US profile image
Tesla_7US in reply toSuzanne333

My mom, her sister and me were all diagnosed with BC at the same time!!! Even though my mom was 27 years older than me and my Aunt was 30 years older than me. That was 10 years ago. I am still here. My mom recently passed from pneumonia at 89 and my Aunt passed of old age at 88. Good luck to you both! Tesla PS, We do not have the BRCA genes. Obviously we've got something that gives us cancer, no one knows what, yet! Tesla

Suzanne333 profile image
Suzanne333 in reply toTesla_7US

Wow. All three of you and not having the BRCA gene. Must just be something in us. My mums mum had womb cancer. Maybe all just an unlucky coincidence.

My sister is feeling worried now though.

Bloody cancer. Xxx

Tesla_7US profile image
Tesla_7US in reply toSuzanne333

Suzanne333, We are totally in the dark ages about the actual causes of cancer because there are SO MANY gene mutations that must occur to cause it. I read that there are hundreds of gene mutations relating to breast cancer. My mother's mum died of brain cancer in her early 50's. My mother's other sister died of lung cancer at age 32. I had genetic testing done in 2006 after my breast cancer. At that time, I was told I didn't have "the cancer genes" HOWEVER, in the last 10 years they've learned of additional hereditary cancer syndromes. I am going Tuesday next for updated genetic testing. I bet this time they find something. I'll post the results when I get them. My gyn onc has requested this testing in case my OC comes back, he says genetic testing will tell him which drugs to use "the next time". While I don't plan to relapse, by God, I'm going to be as prepared as I can to fight this horrid disease. Yes, cancer sucks. Have you had genetic testing done? If you do have a genetic cancer, your sister and children should probably consider doing that for themselves.Tesla

Suzanne333 profile image
Suzanne333 in reply toTesla_7US

I do think it's a lot to do with genetics. I've not had any genetic testing but being as my maternal grandmother and my mum have it, I should look into it.

So many people get cancer I think it's sometimes just pot luck or pot unluck.!!!

I'm just determined to be here for a long time yet despite this diagnosis.

I'm not trying to fight cancer, it's trying to fight me.

And win it won't!!!! Xxx

Tesla_7US profile image
Tesla_7US in reply toSuzanne333

Suz333, I'm reading a book right now called "Radical Remission" by Turner. While I prefer more scientific evidence, this is a great read and full of inspirational survival stories. Here's a link from Amazon that can tell you more about the book: amazon.com/Radical-Remissio...

Suzanne333 profile image
Suzanne333 in reply toTesla_7US

Thank you for that Tesla. I will definitely get the book. Xxx

Suzanne333 profile image
Suzanne333 in reply toTesla_7US

I just ordered it. Off eBay was half the price. Result.

Am looking forward to reading it. Xx

Tesla_7US profile image
Tesla_7US in reply toSuzanne333

Excellent! I'm reading it right now. It's 1:35am Seattle time.

Suzanne333 profile image
Suzanne333 in reply toTesla_7US

You're up late. I'm looking forward to reading it. Xx

all good, and a great picture! xxx

Suzanne333 profile image
Suzanne333 in reply to

Thank you. I'm feeling positive and hopeful. Will have a CT scan in three weeks then hopefully surgery soon after that.

Hope all is ok with you. Xx

Microbabe profile image
Microbabe

You look amazing glad your ca125 dropping... So sorry about your mum life sometimes kicks you in the teeth Doesn't it. Big hugs 😍😍

Suzanne333 profile image
Suzanne333 in reply toMicrobabe

Thank you. Yes life is sometimes pretty cruel. Gotta keep positive.

👍🏻👍🏻👍🏻👍🏻Xxxx

Microbabe profile image
Microbabe in reply toSuzanne333

I Think being positive is such a big part of kicking cancers butt!! X

Suzanne333 profile image
Suzanne333 in reply toMicrobabe

Me too. I just carry on best I can. I do get low especially a week after chemo but then I'm full of beans again. I won't let cancer get the better of me. Xx

Microbabe profile image
Microbabe in reply toSuzanne333

That's such a great attitude... I had a bad day yesturday ... I cried because I was so frustrated with myself I was not able to achieve what i set out to do due to chemo legs lol... But like you I picked myself up and got in with what j could do ... Your photo gives me such inspiration you look fabulous xx

Suzanne333 profile image
Suzanne333 in reply toMicrobabe

Aww. Thank you.

It is hard. Cancer is full of ups and downs. It's a roller coaster of emotions, set backs and side effects.

We do our best. That's all we can do and be here to help and support each other.

Sending you hugs. Xx

Great news great photo x

Suzanne333 profile image
Suzanne333 in reply to

Thank you. Xxx

You look beautiful X

Sorry about your mum, I'm sure she has as much fight as you if not more!

Wishing you the best of luck for the rest of your treatment x

Good news for you, sorry about your mum stay strong and positive. Wishing you both best wishes

Big hugs

Karen

Xx

Elaine2016 profile image
Elaine2016

Fab news. Really great!

Damelza profile image
Damelza

That's great news, you look great!! Well done

That is really good news you are obviously very sensitive to this drug and long may it continue as I am sure it will

Tesla_7US profile image
Tesla_7US

Suzanne333, FANTASTIC NEWS!!!! This precipitous drop is actually a sign of what might become a "complete" response, which is the best outcome any of us could ask for!!!! Keep the Faith. Tesla

Suzanne333 profile image
Suzanne333 in reply toTesla_7US

Hi Tesla. Thank you. I'm so pleased it's all going in the right direction.

Surgery next probably in October . I'm sort of looking forward to it as its another stage out of the way.

Just got to keep going , keep positive where we can - I get very low days . we are all very supportive on this site and it has helped me so much since I joined.

Xxxx

Tesla_7US profile image
Tesla_7US in reply toSuzanne333

Suz333, the people on this site are wonderful. It's very hard to talk to others who have never experienced the misery of OC-- they want to be compassionate but truly have no idea how soul crushing this disease can be. I want to come to the UK so I can meet everyone. I wish I lived closer so we could meet for tea! Tesla in Seattle

IrishMollyO profile image
IrishMollyO in reply toTesla_7US

You will have to take in Ireland too Telsa ! Stop off on the way to the UK ! You have become one of our few ambassadors from the U.S. Thank you for sharing your knowledge with us .

XXX

Tesla_7US profile image
Tesla_7US

Hi MollyO, I've been to Dublin and absolutely loved the place and it's surroundings. We stayed at Clontarf Castle where my husband's company had a meeting. I took a side trip to Powerscourt and fell in love. I intend to visit again. If I do any time soon, I'll let you know!!! Tesla

IrishMollyO profile image
IrishMollyO in reply toTesla_7US

Great Telsa

We have a few more castles for you to sample ! Let me know when you are coming this way again .

XXX

IrishMollyO profile image
IrishMollyO

Hi Suzanne

First of all you look fab. I love the makeup and I wish I looked like that with the no hair look.

Yes. It is a good feeling knowing that CA125 is going down . As you say going in the right direction.

I'm really sorry to hear that your mum has Breast cancer. If there can be any good news about any type of cancer it is that Breast cancer treatment nowadays is very successful . It is mostly found early which is the key to success. As it is the most common there has been a huge amount of research into it. I want to wish you both the very best of luck with future treatments. Take care

XXX

Suzanne333 profile image
Suzanne333 in reply toIrishMollyO

Thank you so much much Molly. Xxx

Brilliant result well done xx

Suzanne333 profile image
Suzanne333 in reply to

Thank you Alison. Xx

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