Hi Ladies
Just two more weeks of Taxol to go.
CA125 came down rapidly at first from 700 to 59, but unfortunately over the last four weeks it has begun to rise.
Up by 4 three weeks ago, then 5 the following week. Had my week off then CA125 went up by 25.
Realise that this is still quite low but hair started growing again so think chemo has stopped working.
Two more rounds, scan a week after that and consultant the week after that.
Hope everyone managing to keep as well as possible.
Janet
I'm so sorry to hear this news. Don't worry though, the doctors can use other chemo cocktails if the taxol hasn't worked as well as the doctors want. Plus, chemo is cumalative, so the more you get the better the result. Keep in touch
Thank you. Hoping there are more options but after nearly five years of battling I am wearing out.Will have to take a deep breath and keep pushing.
Take care
Janet
Hi Janet, you are a warrior with treatments for 5 years. Hang in there, you have many friends on here supporting you. It is a tough journey for sure. I am 74 and wonder how long I can beat this disease. Hugs Donna
I am 5 years nearly too. Come on look how far we have come. You can do this. We are amazing never forget that. Sending positive vibes to you
HiThanks for reply. Feeling a bit down today and sorry for myself.
Congratulations to yourself on coming so far. It's just so wearing and when you think things are going wrong it's not easy to get past it.
Take care and I am sure we, along with everyone else will put up the best fight we can against this disease.
Best wishes
Janet
Yes I know exactly how you feel I have been there many times. You are entitled to feel that way and recharge your batteries. I wish you well .
I’m sure the numbers are discouraging you but they are small increments. I really hope the scan is okay and also that there’s some kind of pill maintenance for you. Hugs.
Thank you
Hi Janet. I have completed 15 weeks of taxol, followed by 2 at 2 weekly , totalling 17 treatments in total. Went today for Oncologist appointment followed by treatment, however treatment did not proceed, as CA125 is rising again, so deemed to no longer be working. Next step CT scan. Hope you get better news. Therese
Hi ThereseWe sound in a similar place.
I started with Caelyx for three rounds, deemed not to be working so went straight onto Taxol.
Seems to have been never ending chemo.
Doctors today for bloods then two more chemo.
I hope that there is some marvellous new maintenance drug for us both.
Lots of love and Best Wishes
Janet
Hi Janet, yes Taxol was my 4th line, i was diagnosed 4 years ago on the 11th of this month. I have had Carbo/Taxol, then carbo/gemcitabine, then carbo by itself, then taxol by itself. All have worked brilliantly, but I have never been ned, and the remission times have got shorter and shorter, until this time none at all.
I have apparently only two funded options left, oral Cyclophosphamide, and gemcitabine by itself. I then have an option which we would have to fund, which is Caelyx. This is not funded here, and will cost about 6k per month. I am Brca negative, so the immunatherapy drugs are not an option, a couple are funded for ovarian cancer, but only for Brca. I could look at funding Avastin, but I have a genetic blood condition which leaves me prone to clots, so I am not a candidate for this. Pity, as Roche have a scheme where they will give the first couple free, and if it works, after 10 infusions they will give the drug free. Again this drug is not funded in NZ.
Really the whole thing is a rollercoaster ride where as you know, you have these massive highs, 😀and then massive lows. ☹️ I will take a few weeks to get my strength back, and to see ct results then decide. I have had quite a few side effects with this last lot, nails are a mess, and one came off. No hair since last August, etc etc . Fingers crossed for you. 💙
Hi Janet, Just wanted to throw another idea at you the small rise might be something entirely different and not connected try to be positive and push on, I so know how difficult that is. Sue xx
Gi jan im not sure on rise of ca125 as mine dropped and stayed at the same level but my hair also grew back druring my treatment . Hope all goes well for you x
Frustrating but there are many other drugs your Onc can use. Avastin has been keeping my CA down. Praying for you!
At the risk of being boring I wondered if you’ve considered the increasingly popular cocktail of drugs approach in Jane McLelland’s book How to Starve Cancer?
The main 3 are being trialled with many different cancers and letrozole plus Metformin has been found to be more effective at shrinking oestrogen receptive tumours .
I’m using this protocol and it’s been helpful so far at keeping things stable (bloods tomorrow and I’m on a letrozole break so we’ll see ).
There are no real side effects either.
My onc and GP have signed the prescriptions off and justified them due to my BMI being high!
Wishing you the very best
Alex
Hi Alex. Many thanks for reply, certainly not boring.I have had the Jane McLelland book for a while and did try Berberine and Fenbendazole for a while but ended up back on chemo and was wary of continuing them at the time.
Onc and doctor not too receptive about alternative treatment but I am considering it again when this treatment ends.
Good luck with your regime and please let us know how things go.
Lots of luck and best wishes
Janet
Same thing happened to me mine was going down really fast got down to 60 minutes start to go out now it's up to a hundred and nine each time it goes up six 7:17 stop it sounds like a statue working to
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