ONYX Trial

[jennyloc14]

Morning all - am being put forward for a new Phase I trial called ONYX - has anyone heard of this trial or actually been placed on it themselves xx

[Emalou71]

Hi Jennyloc14, I'm sorry I've not heard of this trial but wishing you all the very best with it xxxx

[meboo]

Hello. Is this different to the low dose cyclophosphamide and nintedanib trial you previously mentioned? I haven't heard of ONYX, but I have heard of the other drug combination, which I understand is METRO-BIBF. I'm afraid i don't have direct experience of either, but I have done a bit of reading round the cyclophosphamide and nintedanib trial. Either way, congratulations on being accepted on the trial and I hope it goes well.

[jennyloc14 in reply to meboo]

Hiya - no this is a different trial that they think will be better for me xx

[meboo in reply to jennyloc14]

I wish you all the best with it x

[gina]

Hello Jenny

Are you on this trial at the Marsden in Sutton?

I was on this at the start of Feb.It was well tolerated and I felt fine on it.

No hair loss of sickness. Unfortunately it did not work for me and I am about to start weekly Taxol which I had 3 years ago.Just because it didn't work for me it does not mean it will not work for you,we are all different ,I wish you luck with it.xxxxGeorgie

[Gilly49 in reply to gina]

Gina, just sent you a PM. x

[Gilly49]

Hi Jenny, I have also just been offered this trial at the Marsden and have to make a decision this Thursday xxx

[jennyloc14]

Hi Gilly - have got my appointment with them on the 24th - they were having a meeting today to discuss it at their meeting and will send me the info for me to read and sign when I go back - what did you think, its all very daunting isn't it xx

[jennyloc14]

Hi Gina - hope your appointment went well today - my doctor has just rang me to say they definately are putting me forward for this trial and once all screening done will be looking to start it on 8th September - am just waiting for them to email me all the info so I can have a good read up on it xx