I was told that my CA125 was raised following it being checked due to bloating, lack of appetite, bowel issues etc etc on 4th April; around 7 weeks ago. I have had bad symptoms since August last year which were eventually explained away by being told by 3 doctors it was diverticulitis in December2015. Because of this I didn't chase it up further, even though I kept feeling worse and getting bigger, until the end of March. I was given ultrasound a week later - terrible pains by then and have been off work since - which confirmed a large tumour/mass of at least 28x28x20cm. Had CT a week later which revealed it had multiple chambers and mixed contents. Originally was told it was urgent and likely to be cancerous and being sent to local centre of excellence after two local MDT meetings. MDT at centre said they thought it is probably borderline and can have it locally. By the time I have this done (7th June), I will have been waiting for 8 weeks. During that time the thing has grown expedentially (Strangers ask me how overdue I am, one asked if I needed taking to maternity as she thought I was in labour!) Without exaggeration I look as if I am pregnant with quads. I haven't been able to do anything but lie down for 5 weeks and that's with the help of Tramadol. I do hope that their assumption is correct as if not, and it turns out to indeed have a cancerous nature, then weeks and weeks have gone by with nothing being done.
Secondly, my CT revealed a suspicious area in my breast. I went for mammogram, ultrasound and was then punch biopsied (all together). The radiologist (a senior doctor) told me that I had cancer, but it was small and maybe they could be operated on together. I went for the official results last Tuesday to be told that the biopsy had been negative - benign. However, I had to have an urgent retest done. I went for that today and the first thing I asked was what had the radiologist staged it at the first time - the man seemed a little surprised I had asked, but confirmed, as I had suspected, that she had listed it as M5 (malignant). So, another 4 punches have been taken today and he x-rayed one of the samples to ensure he had 'hit the right spot'. I now have to wait another week for results again. I asked if could possibly have them sooner - even if not final after MDT - as I would be in hospital next Tuesday as I was having my surgery. The radiologist then said, 'Oh, are you being induced next week then?!?!'... Completely non-plussed that there is clearly NO link up here what so ever. Same hospital - same floor - grrrr...
I am having a total abdminal hysterectomy, uterus, fallopian tubes, ovaries, cervix and the hideous growing beast all to be removed. How long is it usually before they have some idea of staging/results from this? I have not had any biopsies done on my abdomen/gyney bits which is what worries me about the amount of time I have had to wait.
I guess I just needed to vent to people who would understand. Thank you for listening x