Hi all, hope all is well with you.
Having seen my consultant yesterday, it seems that the Carbo/Caelyx combo may not be working. I had my bloods done on Thursday so the results were ready on Friday, and realised that CA125 hadn’t been requested, so I asked the phlebotomist to do it, which she did. When I started this chemo my CA125 was in the low 400s, now it has gone up to 722. Needless to say this alarmed me slightly! The consultant said that it hadn’t been checked at my last blood test (before my second chemo), so she can’t say if it has gone up this time because it may have been higher last time! I’m having a scan after next weeks treatment which should show if it is doing anything, but I’m having doubts at the moment. I have continued to suffer from difficult bowels, abdominal pains and non ascites bloating.
My scan which I had in June has finally been reported upon - the MDT had reviewed it, but it hadn’t been done by a radiologist. I now have lung nodules, additional soft tissue in various places, increased nodularity and tethering! Who knew! From the summary, I think the main worry are the lung nodules - the word metastatic has appeared for the first time, but it transpires that the scans I had at my first hospital didn’t include my chest (!) so the nodules may have been there for longer.
Oh, and I’ve been having pains in my back and leg so have to have an MRI too!
This isn’t an easy path for any of us, is it - I know that many of you lovely folk are having a much shittier time than me - I’m just having a temporary loss of positivity which I hope will return soon.
Just writing this down (albeit in a slightly garbled style), and sharing with folk who may have been there helps enormously, so thanks for being here for me.
With my love and very best wishes to each and every one of you, Ali x