Ascites

Hello ladies,

Can anyone give me their stories on dealing with ascites?

I had it at Xmas , had it drained and then started weekly taxol.

It came back with a vengeance last week, had five litres drained and it's back already! Didn't think this could happen on chemo?

I'm due to have it drained again next week and they're talking about me having a perm one if it continues which I'm not keen on at all.

At last test my CA 125 had come down to 101 so I'm baffled by what's going on. Any experiences or advice very gratefully recieved

Lisa xxx

9 Replies

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  • Hi Lisa,

    I have ascites but after it was drained it so far has not come back. Sorry I cannot be of more help. Sending you a big hug. xxx Trish

  • Hi Trish, thanks for your reply. Did your ascites develop while you were on chemo? How did you cope before it was drained? I'm so uncomfortable xx

  • I had it before chemo and if was very uncomfortable. Have you been given an explanation as to why it's still happening? If not I would seek answers with my oncologist xxx Trish 

  • I had fluid all the way throw chemo, and i am affraid in my case the chemo wasnt working. hope you have more luck xxx

  • Hi Lisa,

     I had 5 litres drained before chemo, as of yet it hasn't come back. 

    I was told it was possible that it would come back and they would just drain it again. I would imagine they would drain it each time it became uncomfortable for you. 

    I was told the chemo can keep it away but not always. 

    Sorry I cannot be of further help, hope u get it sorted as I know how painful it can be. 

    Hope u enjoyed the sunshine today, xx

  • I am also sorry I have no experience of this, I had acites before surgery but none since but sending you a hug.  I would certainly ask your team as to why this is happening.  Also you could ring Ruth the Ovacome Nurse on Monday if you feel you would get a faster answer, best wishes

  • Oh Lisa, I'm so sorry to hear you're struggling with ascites. I can't offer any advice at all as I've had no experience of it - but am sending love and hugs. 

    xxxx Annie

  • Hello, Lisa. Sorry that you have to deal with ascites. I had it last year when I was diagnosed with ovarian cancer 3C. My oncologist told me that he could have it drained, but he wouldn't recommend doing that as it could come back. So, he said that if  could bear it, it was better not to do anything about it. However, I was at a loss as I had difficulty breathing, so much liquid was inside me. I started to apply salty water compresses on my stomach (2-3 tablespoons of simple salt in half a litre water, boil it for 2-3 minutes; when it is cold apply it on the stomach for the night), and I felt its effect right away. I did it until I had surgery for about three months. I don't know what really helped me - the chemo or the compress - but it worked in my case. Hope it will be helpful to you. 

    Tamara

  • My mother has a PluerX drain fitted into the belly to allow the district nurses to come 2-3 times a week to take off fluid. I would highly recommend it as its made mum so much comfortable. It's very easy to fit and you get used to having it. 

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