I am 39 years old and was recently diagnosed with stage 2 primary peritoneal cancer. I am looking for others who are in the same boat. I am BRCA1+. I do not mind talking to women who have or had ovarian cancer, however, there is a difference between the 2. It is discouraging to come on this website and not even see a drop down box with Primary Peritoneal on it. It's rare, it's treated like ovarian, but it would still be nice to raise awareness.- I get tested with the CA125 blood draw along with a transvaginal ultrasound & pelvic ultrasound. The only thing that picked it up was an elevated CA125.
The initial diagnosis was good: the ovaries were clear. But there was evidence of other, unexplained tumours. Liquid in the omentum. Ascites. Peritoneum. With each new week it seemed a new, strange and thoroughly unwelcome word was being discussed. Finally they found tumors on my left ovary - I have had the left ovary and Fallopian tube removed. They thought at first this was the only problem until they found there is still liquid in the peritoneum and Omentum- I am now on my 6th cycle of chemo - and the liquid is still in these areas - curious if anyone else has had similar scenerios.
Hope to hear from some of you soon. I am on cisplatin and taxol.