My heart and prayers go out to each of you. You are all so brave. I have many of the symptoms and am waiting to have a ct scan done. My insurance would not pay for an MRI. I have been to several specialists for my symptoms (gyne, pc, gastro) & none of them have put my symptoms together, The gastro says its irritable bowel, etc. I am very interested in the early stage symptoms of those who have it and also uncommon symptoms if you have had those.