This has been a gruelling 6 weeks since we have been in lockdown and I have been in limbo with progressing cancer, desperate for treatment.
So the cancer has finally begun to cause the extreme agony of twisting and blocking and totally interfering with my bowels.
I have been reduced to a screaming, pathetic, limp rag of my normal self, having to be carried out of my home and taken by ambulance to my local hospital in the middle of the night - four times in the last month!
Thankfully, with intravenous pain relief, anti nausea meds and fluids, I recover quickly, but with my cancer spreading, my bloods are all over the place, my bowels are in terror along with my family.
It’s terrifying to see me reduced to a whimpering rag, too weak to even call for help when I have am under attack.
So, finally, because of my symptoms escalating, my Oncologist promises to get me into Chemo soon, but I have another problem.
I tested positive for Covid-19 sux weeks ago.
I was treated, totally recovered, have had no symptoms for the last month, but I still test positive.
This may make it hard for our Oncology department to treat me for fear of my infecting others.
I always wear a mask and gloves, and I could come in when no one else is being treated, but I just don’t know what the plan is yet.
Only that I am desperate to stop the spread of my cancer.
Meanwhile, I am now on the low residue diet, which is opposite of my usual healthy whole foods vegetarian diet.
But it’s pretty close to my normal Chemo diet, when I can’t tolerate flavoursome foods, so it will be easy to stick to. I just hope it works to keep me from having another attack.
Just letting you all know what is happening with me.
I just never thought this would happen to me, because I planned to keep the cancer at bay.
Letting it do this to me is not what I planned and it is pretty frightening.
So, just to let you know that the dreaded bowel blockage problem is simply a nasty, undignified and cruel aspect of uncontrolled disease.
And I am encouraging you to not wait for treatment, if you have disease progression in your abdomen.
Wishing you all the best,