Hello. my name is Ryan. My daughter Alyvia, age 15, has osteosarcoma. A bone cancer. She was diagnosed march 2019. It started in her knee. She went thru the standard regiment of chemo for child hood cancer of this type and a knee replacement, here in Atlanta GA. It reoccurred in her hip and then we had a hip replacement. Then showed spots in both lungs and had surgery to remove some of the spots. After surgery we started a different type of chemo and since stopped because scans showed that the chemo was not doing anything. Doctors recommended a proton beam radiation treatment that will maybe slow the cancers progression. We just finished that treatment approx 8 weeks ago and a scan last week showed no new spots and a very small amount of anything increasing in size. We are looking for treatment suggestions weather here in the US or outside. It seems we have reached our limits here. Too many "Politics and greed". please feel free to so share any advice, experience, suggestions. PLEASE!!! thankyou...
WE NEED A DIRECTION! PLEASE HELP! - Osteoporosis Support
WE NEED A DIRECTION! PLEASE HELP!


Written by

Alyviascure
To view profiles and participate in discussions please or .
Read more about...
4 Replies
•
I'm not sure if anyone here has experience or knowledge of bone cancer but hopefully someone can be of help. I understand reaching out to as many sources as possible for your child.
You both have my prayers.
Hi Ryan, wishing your daughter the best in her treatments. We don't cover bone cancer in this forum, but anyone who has suggestions is welcome to chime in.
Your post surely puts everything in prospective. My prayers are with Alyvia. Carol
Not what you're looking for?
You may also like...
Osteoporosis worsening
I was diagnosed Breast Cancer in April 2021 and had to come off hormone replacement therapy. The...
Inspiring 88 year old
It’s all incredibly confusing! I read the posts here often. Think about this story. I met an 88...
Exrutiating Back Pain
I fractured my L2 eight weeks ago washing up. I was sent for an x-ray which showed the fracture...
Recommendations regarding meds and exercise with osteoporosis.
Hi Everyone! A few questions I would like to comment on….It was suggested to me by a physical...
Research your options!!
I saw my doctor the other day to discuss the results from my DEXA scan. I am listed as being in...