I have been suffering with RA & Fibromyalgia since around yr 2000 and
I went to the rheumo clinic on Thursday last & got told off as my ESR was up at 47 (as opposed to 13, on my last visit) & I have been feeling pretty rubbish for a while now. I was told that I should have called them straight away as I have had a lot of pain especially in my feet, shoulders & neck. I have been on Enbrel sub cut injection for about 3 years now along with amitryptylene for the fibromyalgia & prednisolone, naproxen, & codiene for the inflammation & pain & they also gave me metpid last time I had a really bad flare. I have tried mtx, which made me feel awful, sulphasalazine didnt agree at all, hydroxychloroquine, (which caused peripheral neuropathy, severe numbness of my toes & fingers along with the raynauds), I couldnt tell if the bath water was too hot or cold, I told them about this & they said it may be the cause but since stopping it, my feeling has returned although not fully in my feet. I ended up with a steroid injection & more xrays of hands & feet on Thursday, & now have to wait to see what else they can give me along with the Enbrel as it would seem that I have built up a resistance to it? I know there are other things out there, & I guess I was getting a bit too cocky as the Enbrel seemed to really settle things down for a while! I have tried diet changes, vitamin remedies etc, & just about everything I can think of. I do work but this is becoming increasingly difficult due to the tiredness & fatigue of not sleeping due to the pain! Am really not sure what is next! Trouble is cant afford to not work! so feel like Im up against a brick wall now!!!