Sorry i've not been on here for a while - been hiding under ny duvet after my latest rheumy appointment-probably one of the worst since i've been diagnosed 6 yrs ago
I haven't felt well since the start of August nothing specific just a feeling of having mild flu,achey more tired and more swollen joints than usual.I didn't contact rhuemy nurse as i had an appt last week
I knew i was in trouble when the consultant was there normally he just pops in to OK everything the nurse has done.
Well my DAS score is 6.3 -not been that high for years,ESR is over 100 normally between 20-30 and my iron level has dropped below 8 .It seems that the RA is winning the battle.
I can't have any more MTX as i'm already on 25mg injections so they are going to assess me for anti TNF,had a rather large steroid injection and i'm back on the dreaded steroid tablets after spending so long getting down to 5 mg.They're doing more tests to find out why the iron's so low so in the meantime i'm back on the lovely iron tablets -YUCK.I'm also going back in Novemeber to have steroid injections in my knees (again) and elbows.
I'm normally so positive about things but this has knocked me off my feet .I had a weeks holiday of work but due back Monday and don't know how i'm going to cope- work are good but i'm only allowed so much time of with RA (8 days) before attendance issues arise.Husband says give up work we can manage but i need to work for me i'm not letting this b***** disease beat me but i really feel i've hit a brick wall and i've not felt this before
Sorry for the moan but it helps to write it down
Hope you are all OK