Hello,
As most of you might know, I was diagnosed 3 years ago with RA and most of my joints were affected at that time, in particular my right ankle & wrist. Well anyway long time passed and I have the beast under control (or rather the meds have) a combination of plaquinil, mtx and Humira. I still have my tired times, but hey don't we all!
To cut a long story short, the RA 'ate' my main tendon in my R ankle (& Isuspect my wrist too) I went to surgeon to see could he do anything about my bunions and the funny way I was walking even with 3rd set of orthotics, so he ordered an MRI and lo & behold main tendon in ankle is no more!!! This led me to wondering what else was going on that I did'nt know about, we tend to think its just joints but 'systemic' is 'systemic'. Anyway, wondering was as far as I let myself go for now.
Same surgeon said its urgent he operates, as apparently I will end up walking on ankle bones (urg) I tried to wiggle out of it because I am not that bad really, in fact I feel good and pain free mostly (this is remission as such?) & why would I want to set my self back by having 3 bones broken & reset in my ankle and refused? three month recovery time minimum!!! He says ankle in wrong place for ankle replacement which I will need in future. He can see into the future courtesy of MRIs
Well wiggling did'nt work and the operation is to take place on Wednesday 19th October. I got my bedroom redecorated (as I am going to be seeing so much of it) that is if I can get up the stairs? Plan B is I bought a memory foam topper for my sons bed downstairs in case I can't get upstairs, however his walls are covered with animations Rude & not so rude, but all his teenage friends had a go signing and doodling on the walls ( free expression) I'm THAT type of mother! So don't know can I relax in there?. At the same time I can't paint over it, because of course it will be worth a fortune when he is a famous film maker (deluded mother syndrome)
As my hubby says 'we will see what happens after the operation, no point in worrying until your home' - it was me decorated/ shopped/ nested in advance. In fact thats all he has said 'lets wait & see', its not him that is going to be stuck in house is it?. I got the box set of Mad Men for convalescence and am on the last episode - love it!.
I have done six inches of the knitting project, that is abandoned due to impact on wrists. I still have the pound shop art stuff and about ten books. Anyone reccommend any films or box sets to watch?. Good books???
Anyway, am taking ipad to hospital so will keep you posted. I have decided to stop Humira & MTX for couple of weeks even though the surgeon & my Rheumy advised staying on everything with no break. On balance its my decision is'nt it?
I'll be looking for jokes I will probably be out of work until 2012, so thats good is'nt it??
Regards, Gina.