My partners family have finally organised the allotment picnic. Some of you may remember me asking what you'd do, and there were suggestions about folding chairs and bringing people along with me. But then I had a recurrence of that light allergy and so an additional reason for not going to add to the list:
- no loos (for the methotrexate dash)
- possible sunshine (which has materialised)
- marshy underfoot and generally damp
So we had one of those instant decision moments that it would be better I didnt go. So this afternoon I'm at home, wondering how everyone is getting on and feeling rather guilty about not being part of the whole thing. And at the same time feeling that it would have been better if people had tried to organise something that would not have excluded me.
I remember many years ago when I worked in London for an anti-discrimination body, attending a discussion about disability legislation and being quite surprised at how angry some of the disabled people were about how their needs werent taken into account. And how they insisted that society had to change, not them. And now I feel to be in a similar place. Why is it that we apologise - as when holding people up when climbing stairs. Sorry! I've got a funny knee! Sorry!
So why is it that we are angry and apologetic at the same time?
And what kind of adjustments should we expect people in our lives to make in things like entertainment and leisure things. And how far should this go? How do we get people to realise what is possible / desirable and what isnt.
Anyway to be honest I have had quite a nice afternoon doing some painting and catching up with the radio. But wouldnt it be better to be out with other people? I'm sure some of you out there will have had similar experiences.
Finally, has anyone noticed a correspondence on the Guardian website about living with chronic illness? It seems to have been taken over rather by people with ME, but I managed to get a plug in for the NRAS.
Have a nice afternoon,