Hello, here i am stuck in my chair,not in the literal sense pete!! I am in a bit of a flare,i am so tired and exhausted.Went to see my dr this morning about my drugs and how i feel overall. I told him how i feel,i also have to add that this is the dr who wouldn't refer me privately for my knee op as he felt there was nothing wrong. He wanted to know how the knee was now. I told him that it isn't moving like it was before. He has given me tramadol so when i have a bad spell like i am having now. He was quiet about the knee i did see he had my discharge summary on the computer. Now i would love to see that. He seems to be singing from the same hymn sheet as i am i believe now. It is sad that nobody would believe me before.
I have been asleep on and off during the day. My hands are swollen and i don't know where to put myself. I also have sore eyes,everything seems to ache. I have to stop and start typing. I just don't have the energy to do anything. It is hard work trying to be upbeat and i do try very hard to be cheerful. I wear bright colours in my clothing to try and cheer myself up. I am resting in my recliner hence the title stuck in my chair. I hope that cheers some of you up imagining me stuck in a chair.
I hope the rain is not coming down where you all are in the country. xxx
Ps the picture was taken in st. ives by my good friend lisa the day before we came home..
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sylvi
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Well Sylvi what can i say, you posted 1 hour ago and i bet by now you are out of that chair and doing something.Yes i know who am i to talk !! lol. Loving the photo and i for one think it was a marvellous achievement to pack up and go on holiday so soon after all that surgery.
Having said that i think you still have a way to go so be proud of what you have achieved.
Beth i haven't moved unless it has been to go to the loo. The holiday hubby did everything and i mean everything. He is so amazing. The photo was taken in st. ives by lisa who i met on here. I am pleased with how far i have come,but you what its like you want everything yesterday,i know i do. I don't think i am down just in pain from burning joints and i am so exhausted,thats the thing i can't get my head around.
sylvi.xx
Hi Sylvi,
That's a lovely picture. Would you recommend St Ives? I might try an overnight trip sometime.
I'm sorry you feel so poorly. That exhaustion is totally consuming isn't it? I hope. they are checking your bloods regularly and that you are not still harbouring an infection in your knee or anaemic.
Judy xx
p.s. I love the way you and your husband care for and appreciate each other. How long have you been married now?
Judy, 29yrs next month. St ives is a lovely town. It is a bit hilly and if you have a scooter it is difficult as there is a lot of cobbles. Overall i would go back at some point.
I am at pcyhio tomorrow so i will get my bloods done while i'm down there. I sure hope there is no infection left. I feel a bit brighter despite the exhaustion and pain.
Sylvi.xx
I'm glad you feel brighter at least Sylvi. I haven't had a flare up for ages now and you've reminded me of how lucky I am. But sometimes when I've had a lot of pain I've managed to be jollier than when it's just lurking away in the far distance - I find it more sinister when it's in hiding sometimes as it makes me feel ill (or the drugs do I don't know which) but it's not clearly identifiable if that makes any sense? At least when it's bad and I can see visible swelling it's like I've got my enemy close and can clap my eyes on it and feel it - when it's lurking in the background I don't trust it at all - think it might mug me when I'm least expecting it! Take care and hope you keep feeling brighter with your bright clothing and nails to get you through the flare. Tilda x
Must be hard for you Sylvi to be stuck indoors. But hope you can manage to do some knee exercises so you can get it moving again after the op. Take care. polly
Ann,i often sleep in my recliner as sometimes that is the only place i can get comfy. Its notideal,but at least it keeps me in one place and i do sleep. Ann i feel for you not being able to get out od bed,i have to say i use the wardrobe and then on the landing theres the thing that stops you falling down the stairs. Then there is the sink and the radiator to help me get up and down. This morning my knee is giving me hell and i don't know why. I am down the hospital this morning so i will ask.
I can't have patches as they do horrible things to my head. I have paracetamol and two types of tramadol to take. I usually stick to the paracetamol but i am mixing them with the tramadol at the moment.
Its no fun when things break down is ann. My scooter let me down in cornwall and it cost me £150 to get it fixed. I was without it for days and boy was it hard, so i know how hard it is for you.
I have been able to get about the house in most cases without a stick. I need two sticks to go out and about as i can't walk that far yet. I find my knee is not so good during the night hence holding onto things.
Oh Sylvi your blogs. make me laugh,your blogs always give me hope that tomorrow. Will always be better,I felt like you do last week and no matter what I tried. I had to give in and went to sleep in the middle. Of the day,4 hours I slept for and did feel a little better after,I,am coming to you(on here) for advice on a knee open as seeing. Surgeon On 9th of August,I so hope you feel like your old self soon hun and stay in that recliner and just relax and let the world look after its self for a while xxxx
loved the pic and your blog did make me smile. I hope your hospital visit can sort something out for you today and that you feel a bit better. Sun has just come out here and I am wishing it your way.
Hi girlies, just got back from the hospital. Good news on the knee at least. I have a 100% bend on it now both bent and flat out. Matt is very pleased with me and told me to carry on what i have been doing. He did say that as i am having a flare it will cause my knee to ache more. Then i had a blood test done and after i got home i spoke to my rheumy nurse. She told that the swab that was taken of my knee was infected. Now i have to take it easy whatever that means!!
There is not much sun here yet. Have a lovely afternoon. sylvi.xxx
Afternoon Sylvi,good news about the knee bending 100% just shows how important the physio is ( and a good surgeon). I have wondered how a flare would affect a replacement joint,hopefully less painful than before the op.Do they they think the infection is completely clear ?
I'm having to rest up today i feel totally wiped out,damn shingles!! just hate being housebound.Still tomorrows another day
Beth, it feels like the only news i have had. My ra and fibro wants to play and it is making feel rubbish. Hubby dropped me up the village and after having a nosey round i came and did a few bits on here abd as the sun was up i got my rocking chair out the front of the house and soaked up the rays.
It seems to me that a lot of us are suffering in one way or another at the moment,it doesn't make sense does it. The sun seems to have disappeared from the front of my house. I bet your shingles are getting fed up with the shingles as i have heard that it can be quite painful. Its bad enough that you have ra let alone getting shingles..
Yes must admit i am getting a bit peed off with it, as much as i try to get on with some sort of a normal life another health issue jumps up and bites!! Like i said on my sunday blog i go through one episode after another without any conclusion to the one before,. like the pain over my lung area has started up again.Have been doing a bit of research and shingles can attack the lungs so am wondering if this is where it all started,mind in overdrive now !! lol. So doing the sensible thing and got app. to see my gp. 2morrow as there are a few things i need to sort,it's the same one that diagnosed the shingles and she's willing to explain and she's caring.This makes a huge difference to me anyway.
Loving the rocking chair idea i think a piccy of you rocking away in it would be good.
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Why do you need a wheel chair when you have RA?
I'm lost in a pit of depression 
my knees
