Hi All - hope you are well?
Just a quickie to update every one.
Had my final assessment about two and half wks ago. Got the phone call on tuesday to arrange delivery and then to book nurse to demonstrate/teach how to administer the drug. I am due to start next wednesday.
I should mention that I had a flare the jubilee week and could not get to the hospital as the first two days I could not walk and there was noone available to take me up to the hospital later on that wk. So watched the jubilee celebrations from my bed in my bed room in flare up pain.
When I had to go for my final assessment the rheumy nurse convinced me that I should have a steroid injection as my joints were still warm & swollened and she feared I would flare up again - soon. Crying and really upset as I had already given 5 vials of blood for the anti tnf screening (hep and tb etc), earlier that morning, relunctantly I agreed. For all those that know me I am really scared of injections. Well on that day the giving blood nurse was really good and it did not hurt, neither did the steroid injection. I might add the rheumy nurse used a needle with the smallest needle, to minimise the discomfort I might feel!
Really glad that I had the steroid injection because I feel much better now and I am virtually experiencing no pain and thats 2.5 wks later. I have some discomfort form stepping down the oral steroids. Let me tell you, the first few days of 4mg was agony, but I persevered and feel much better now.
I will definately have the steroid by injection again sometime in the future and I am hoping that the effects last until the end of school term at least, but secretly hoping it will lasts until the end of the school hols.
Take care all and thanks for reading my blog