Is it me or..........: Do other fellow sufferers have... - NRAS

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Is it me or..........

7 Replies

Do other fellow sufferers have the same as me, which is- pain which is so intense it doubles me up, my pains are in my shins, fingers, feet,any where really but the mentioned are the most trouble some.

I mentioned it to my OT today, she looked at me clueless, I also mentioned it to my consultant (RA) but she also drew a blank.

What is going on ?

Can anyone give me any insight.

Now it hitting my shoulder.......ouch!

7 Replies
fizzy profile image
fizzy

I have had this....the pains are excruciating, I often get it in my shoulders, big toes and thumbs and wrists. they come on very quickly and last 36 hours - 4-5 days....nothing really helps me, its just a matter of time....I just try to get on with things...perhaps try heat packs / warm bath? and take regular painkillers despite whether you have pains at the time or not....I get less pains now I take paracetamol daily. good luck x

I had this last year but have not had it this year apart from one excruciating episode in my wrist in February and a lot of pain and swelling in my ankle last weekend. Apart from this, since I've started MTX I've experienced only dull but constant low level pain - nothing worth screaming into my pillow over though. Hope people suggest things for you and good luck. TTx

sylvi profile image
sylvi

Reikimaster,have you thought it might be fibromyalgia,because last year i had pains in places where my ra wasn't and i couldn't make sense of it. I ended up seeing my nurse down the hospital and and she had another dr who knew what i was talking about and it turned to be fibrmyalgia. See your drs and suggest this.

Sylvi.xx

Im unsure what to think, the sensation only last for minuets, its agonising when it strikes. Then it goes .

Suppose I better just accept it , as a mystery .

Thanks for your help x

No it's not really a mystery Reikmaster - it is the RA I think. I do have these flashing pains sometimes - so intense that I feel as if I've imagined them when they go away as fast as they came. I did have much more of it last year when everything kicked off - and I would draw breath and feel shocked by the intensity of it then it would pass but it seems to be just a stage we go through. Everyone is different with their RA of course but I have certainly experienced it as you describe. Tilda x

bigmommy profile image
bigmommy

Hi I also have this and my rhumy dr also says that it is fibromyalgia which atackd the muscles rather than the joints with ra it is agonizing. But don't think much can be done about it I just keep taking the pain killers and hope that it will go away xx

Thanks

Thought It was just me on my lonesome- been a bit hypo, But the pain is very real . Have fun over the weekend xxxxxx

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