Hi everyone hope you are having a pain free day..........I know i had a excellent experience with my rehumy last week , But my brother has had RA for 20 years now, and has given me a list of meds he has been on in the past,
He mentioned that he was on mtx about 7 years ago and it never worked for him, He said he was then given Humira which worked for 3 years and now he is on Enbrel which he injects every two weeks,
I know that all meds work differently on different people, But he seems to think that i am being cheated out of a better drug like the one he is on, Also because we are family it will not work for me neither,
I know that a lot of you on this site have been though a lot (like my brother) with one drug or another and have lost the full use of a lot of limbs etc(, My brother is in a wheel chair now)
I know he is just showing how much he cares and doesn't want me to go though the same,
And i also know that a lot of drugs have changed a lot since he was diagnosed,
Not sure how much mtx has changed, but he wasn't given hydroxychloroquine with it at the time, I know you would all want the best for anyone with RA in your family,
NOW MY BIG QUESTIONS AT LAST....... I DO GO ON SOME TIMES,
Would you push to be put on the same drug?
Would you try the mtx drug out first?
Do you think it is down to the costing?
Is this drug only given to patient with serve RA?
Would you push your sister to go on the same drug as you?
Sorry I'm just getting a bit confused to know what to do for the best, as i am going to see my GP on Thursday, I do understand what he is saying, but it would just be nice to here want you all think on here, and what you would do.........
Thank you all for taking time to read this, Lots of hugs and Xxxx
I would try to find out what rationale they have for giving meds. Look at NICE guidelines, I live in Scotland where things are different, but when I was first diagnosed I was still in England and I was given dimards disease modifying drugs at first. They didn't make enough difference - this process took several months/years and I had to keep up pressure. Finally I was given anti tnf and that has made a lot of difference. But there are financial constraints, and I also think that being a person who keeps up the pressure will have an effect. I don't think they give anti tnf/ biologic meds first. Do you have a date for next meeting with consultant? Mtxate does work for many people I think. But if it doesn't then it can be combined with biologic treatment. Hope this makes sense and that you do well
Hi Cathie I've not received My follow up appointment yet, But have a appointment on Thursday To see my GP and start meds and to check my bloods and xrays,
Thanks for your answers, Take care XXX
The GP can't prescribe the anti-tnf drugs anyway, only consultant rheumy's can do that. My GP won't actually change anything re my RA meds except the painkillers, and for anything to do with the RA she says I have to talk to consultant.
It's really silly,they have taken so much away from our GPs these days,
I remember when i had my keyhole surgery on my knee last year, i had to see a triage, then a knee specialist, just to get a MRI scan, It took months, So if i have side affects with my meds, i have to wait until my next appointment to see the rhemy, It's not good is it x