Early wednesday morning...

[sylvi]

Well here i am at 3.30 in the morning and i'm downstairs again. The reason is because i did a tad too much walking on monday. Will i ever learn, after this i certainly hope so. I fell asleep shortly after 9pm last night and the quality of sleep was good,its just that by about 3.am i was uncomfortable and the knee was giving me hell.

On monday i walked half-way round our little close. That was in the morning,then when hubby came home at about 3 in the afternoon he took me up the village to the spar where i hobbled round the shop. Then he took me down to the allotment,he drew the car right up to our plot and this is when i should have stayed in the car. I didn't as i wanted to see how everything was growing. When we got home i had a bath and settled down to watch the jubilee concert. Our queen is marvelous for her age,she is more mobile than me and a lot of you as well. If i'm half as fit as she is at 86 i will be happy.

Then yesterday i rested and watched the service of thanks giving for the queen.By this time i was starting to feel like i had ran a marathon. Felt that bad i went to bed at 6pm. I watched springwatch and i put the lights out. So here i am with a cup of tea that hubby made for me before he goes to work. I am supposed to go to a parade in nuneaton this evening,but that is looking less likely now. I wouldn't be walking,they have hired a wheelchair for me,but as it looks like rain and i have been up a fair chunk of the night i think it might be beter for me to stay here. I hate this feeling that i can't go out when i like. If i go out it has to be in the morning,becuase by the afternoon i'm not fit for man or beast.

Well l.ovely people i hope that when your reading this you will have had you quota of sleep and that your wide eyed and bushy tailed.

sylvi.xx

[Hidden]

You did better than me as i go no sleep at all. I torn a muscle in my shoulder after banging it and its gone cannot lift my arm up to put cup in cupboard.

Not slept properly for weeks and am very crabit.

[Hidden]

I was awake until about 3.30am. We need an insomniacs blog for these lonely late nights! Hope you both feel better soon. My excuse...too much Coke Zero and associated caffeine

Paula x

[sylvi in reply to Hidden]

What was in the diet coke, rum!! hope your well.xxxx

[Hidden in reply to sylvi]

Sadly no Rum for me as I'm tea total since getting Ra Mmm I did love rum and coke though....

[sylvi in reply to Hidden]

I've been teatotal for ten years due to a hernia,best thing ever happened to me. my poisin was wine and cider. I kept away from the spirits due to family reasons. xxx

[Hidden in reply to sylvi]

It's funny Sylvi but I thought I'd miss it but I don't. I know I used to drink too much and it's probably the main reason I ended up with so much of a weight problem. Go us with our happy livers

[sylvi in reply to Hidden]

I too ws surprised By that as well seeing as alcoholism runs in my family. I can smell when someone has had a drink even if its only one. xxxx

[sylvi]

You poor thing,my sister has a torn muscle in her shoulder and she is waiting for a scan. Have you been back to the drs and seen what they can do to help you. I think i might try and get my head down in a bit. You take care sylvi.xx

[Hobbles]

Sylvi, your as bad as me, we never learn do we, just as soon as we get a glimmer of feeling well/ back to normal we push ourselves just that little bit more then we wonder why we can't more the next day.

Rest well, have a little lie down and take all your meds and your never know the rain may keep away and you can attend tonight. Even for an hour, it might lift your spirits. xx

P.s don't despair you have already climbed the mountain,you just need to slowly make your way back now. Xx

[sylvi]

Hobbles you brought a smile to my face,i'm glad i'm not the only one who over dos it. It was on monday and here i am suffering on a wednesday. I like the idea that i have climbed the mountain,the going down should be easy shouldn't it!! If its raining i won't be going anywhere. you take care love sylvi.xx

[caggy]

Hi Sylvie, I made the mistake of resting and watching tele till 11pm then couldn't even get off till after 1am then wide awake by 5 so I guess 4 hours is it for today, hoping to drive to Norwich to get hair done today wanted to shop too but I to walked down a country lane yesterday thinking that the excersise will do me good now my thigh wont stop hurting and have you ever laughed and got lockjaw? only this happened again for me on Mon and now my jaw really hurts even eating rice crispies feel like my teeth are out of joint. haven't driven for ages hope I'll be safe.

[sylvi]

I find it funny just reading your little blog,Have you been to the drs and see if they can sort it out. xxx

[caggy in reply to sylvi]

Hi Sylvie, I'm back from hairdressers and shops in one piece, forgot how hard it was to steer the car, wrists really swelling 'power steering!' very funny. Got my husband to drop letter into surgery to day and sent another in post to Rheu con. still can't open jaw, but it's an improvement on being speechless for 10 days, made the mistake of thinking I could chew steak burger though struggled through sucking the life out of it and sliding the mash after it. as for thigh! I daren't ask the gp for another appt I think she will lock me up, I'll wait and see if she replies to letter. Hope you are feeling a bit brighter now and I really enjoy reading these bloggs too, never done this before but it's a real help, makes me feel stupid stopping my MTX if only I knew about this site I would have thought twice.

[BossyB]

Well I enjoyed the jubilee weekend but stupid me forgot to order more folic acid and had not had any for 1 week, when i injected yesterday the side effects were pretty rough and i have drove 20 miles to work this morning and still feeling really nauseus. But that will teach me. I have to say i hate mtx but the positives are it does help. Still having flares in my hands though but back at rheumy clinic on 19th so see what Doc says then.

I only ever seem to blog when i feel awful, i must blog when i am feeling positive and i feel like a right moan...

deb

[Hidden]

Hope you had a lovely weekend Sylvie and enjoyed all the festivities. Got to see a bit of it on tv, she does look great for her age. Well at least you can rest today - it is supposed to pour down so that is a great excuse to settle yourself with a good book or tv programme and have a nice lazy day.

[sylvi]

Ladies i am sitting here in a bit of pain and am very fed up.I am so tired of what is happening to me.I know that in the long term my knee will get better,but at the moment i could cry for england. Hope you all ahve a better day than i'm having. love sylvi.xx

[Jan66]

This is such a s*** disease isn't it, I really feel for you. Cry,shout,yell, scream maybe even throw something if you have the energy and swear a lot.

This may even make you laugh a bit especially if you are on your own when u do it.

Other than that, have a 'duvet day' - xxxx jan

[caggy in reply to Jan66]

Hi Jan, I was told to go and throw some stones into the sea and with each one send off all the pains and worries and come back rejoicing, haven't done that yet but will let you know if it works.....Caggy

[Kathyfitz12]

I have had RA for 12 years and I feel so sorry for all of you who are now adjusting to having it. But it gets better....it took me about 5 years to get settled on the rights meds and find the right RA specialist....who listened to me and didn't just dictate what the book said I needed. I would say is TRY not to stress - if I get in a state about a new ache or pain it only makes it worse.When you are in agony in the middle of the night it's not easy to do but I then think of all the more dreadful diseases I could have. A relative has Motor Neurone Disease and my life with RA is a walk in the park compared to the indignities & pain she suffers.So live life as well as you can and just pray someone somewhere comes up with better treatement for us soon.