Sitting here cannot sleep, and so looking forward to taking week 7 of mtx. mY Hands and fingers hurt, they are swollen and stiff, wondered if this medication will ever work, i have had bad headaches, tummy upsets, now ulcers in my mouth and my mouth hurts. I have had to rhumy appointments, the first one for my diagnosis, which was a leaflet slipped accross the consultants desk and two leaflets on the meds, and a depot steroid injection which really messed up my moods, and no opportunities to ask any questions, the second one, was a starting dose of mtx of 15mg, another injectioin and about to have my third in a few weeks, she did not recommend pain medication, supports or anything, or any support with the diagnosis. She did say the mtx could go up, etc, and at my last appointment when I was in so much pain, it was oh the illness will stablise, don't worry. If I have another professional say that to me at the moment, i will kick them. I am tired all the time, driven mad by the pain, and it is going to get to the stage and i am nearly there where i will get to the shed and get my husband to chop the hands off. My Rhumy appt is in April, do i ask about splints, steroids oral that is, and prarfin oil, to rub in to the hands, I just do not want to be smiled at sweetly and handed more medication when i need to know how to protect my joints exoecially at night and during the day, and what are the best exercisises to do. I thought a local RA group would be good for me to join, and i e mailed the person who runs the group local to me, and they have not had the courtsey to ring me back and that has been six weeks ago, one of our local groups has folded because no one would run it, and i have not met anyone with RA and on top enduring mental health problems, I battle BIpolar on top of the RA, it is one long learning curve, and the patient is left alone to get even the basic information and no support, the GP says a consultant problem, the CPN fobs you off speak to the Rhumy nurse, i would if our centre had one, and the pychisatrist go to soical serivces and get help from them to help out at home, yeah already lost out on that, you know the answer to that, you have a husband and a family at home, they can do everything there is nothing we can do, I just wondered what other peoples expereinces were in the first few months of being diagnosed, and anything you can share with me that may help me as i am battling the mine field. Really scared and anxious, and totally fed up. Hang in there all of you and thinking of you all.
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