Still feeling rough....: Morning everyone, Well i... - NRAS

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Still feeling rough....

sylvi profile image
28 Replies

Morning everyone, Well i have been on the iron tablets for two days now and boy do i know it what with the big dose of steroids i am on as well. My poor tummy is poorly that every morning since i started taking them. It has not been fun i can tell you. I have to laugh i hope i lose some wait with going to the loo all the time. I feel so exhausted as well and all that without adding in my hip which is still very painful. Well i can look forward to feeling brighter in the coming weeks i hope when the iron tablets do their job.

Have a lovely Sunday everyone. xxxxx

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sylvi
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28 Replies
MadBunny profile image
MadBunny

So sorry to hear they're affecting you badly Sylvie . Thank you for your kind wishes. Bless you, you have so much kindness and love to give .

You're an inspiration in the way you keep going and manage to find humour in a difficult situation

I hope you start to feel more comfortable soon.

Sending you hugs, and warm wishes for a calmer day 🐰

sylvi profile image
sylvi in reply toMadBunny

Well i have to laugh darling otherwise i would be so depressed. xxxxx

MadBunny profile image
MadBunny in reply tosylvi

That's true xxx

Haz58 profile image
Haz58 in reply tosylvi

They say laughter is the best medicine but sometimes it's hard. I hope you get some relief very soon. Xx

sylvi profile image
sylvi in reply toHaz58

Thank you darling. xxxx

helenlw7 profile image
helenlw7

I’m glad the iron tablets are working for you, but sorry you’re having to spend so much time in the toilet! My iron tablet’s haven’t started working yet, but I’ve only been taking them for a week. I had a lovely 3 hour nap yesterday afternoon, but what a waste of a day!

sylvi profile image
sylvi in reply tohelenlw7

The iron tablets have made me go to the loo more than ever. Good old imodium. xxxxx

medway-lady profile image
medway-lady

I’m sorry but you need to go back to GP and talk about a different tablet. Don’t take anything not prescribed as it might affect the absorption. I know it’s early days but don’t wait to long as constant upset tummy is really bad. I hope it gets better but please don’t just put up with it.

sylvi profile image
sylvi in reply tomedway-lady

I have it on and off for a long time darling. Antibiotics do it to me as well. xxxx

medway-lady profile image
medway-lady in reply tosylvi

You might have another issue, so you really should go back to GP if its B12 then it can be given by injection as I have as malabsorption of B12 so its a real issue. I have same with antibiotics but don't just leave this as you're getting rid of the iron before it does any good. Sorry Sylvi but I don't think you should ignore this. Plenty of brave buried patients in churchyard who just carried on. We not medically qualified but please talk to the GP this week as this is not normal.

Fruitandnutcase profile image
Fruitandnutcase

Sounds awful Sylvi. I know how exhausting an ITU can be with constantly running to the loo.

Could your doctor not arrange for you to have your iron by infusion? I think (but not sure) that infusions bypass the gut. Someone in my Pilates group had one last week, she said it took a while as the nurse slowed down the flow as it was her first infusion. Maybe you could speak to your doctor or one of your consultants because this doesn’t sound like it’s good for you especially with other things going on.

Adorable1 profile image
Adorable1

Hi sylvi

So sorry to read of these struggles for you. Sometimes it really is just crap.

I’m wishing you to feel better soon, you sure deserve to!

Sending every good wish to you ❤️

Neonkittie17 profile image
Neonkittie17

Can you ask if a different variation of the iron tablet is available? I couldn’t take the tablets when I had anaemia in 1995. Sorry your tum is in turmoil. You don’t need this added to the other health issues you have to face. xx

Spanelmad profile image
Spanelmad

They shouldn't be effecting your bowels this badly 2 days in you need to contact your gp/rheumatologist for a change in mg

sylvi profile image
sylvi in reply toSpanelmad

They do it everything.xxx

nanny_bee71 profile image
nanny_bee71

Hang in there Sylvi - you give so much encouragement to others even when you are going through so much yourself. Hopefully you will start feeling some relief soon. ❤️❤️

sylvi profile image
sylvi in reply tonanny_bee71

Thank you darling i do try to support others where i can as i know how hard it is to navigate the system. Also if i can bring some light into it all well and good. xxx

sylvi profile image
sylvi

Morning everyone, another day, another dollar as they say and i am back here letting you know what i have done this morning. I have rang my rheumy dept and i know the nurse i want to speak to will ring me back about this diarrhea i get every morning. Thanks to Imodium i hope i have stopped it in its tracks this morning, only time will tell.. Thank you all for your support. Love you all. xxxx

Evie3 profile image
Evie3

when I had iron tablets, many years ago they had the opposite effect! Not sure which is worse 🤓

Green230461 profile image
Green230461

You hang in there IRON LADY 😁

sylvi profile image
sylvi in reply toGreen230461

I will try darling. Xxxx̌

sylvi profile image
sylvi in reply toGreen230461

I will try darling. Xxxx̌l

secrets22 profile image
secrets22

Funny, Iron tablets have the opposite effect on me, they bung me up for days on end.😁

Gnarli profile image
Gnarli

As if you didn't have enough going on already, Sylvi. As you've already had a lot of helpful advice I can only wish you the very best

Happy5 profile image
Happy5

oh sylvi know how you feel been dealing with D & V since stopping the Co-Codamol body trying to readjust. On top of that my RA appt tomorrow cancelled now put to next week.

Hey pain bit easier but rest of me feels like it's going through a war.

🤗

WilfDog profile image
WilfDog

Great you have contacted the rheumatologist Sylvi. I hope they can sort you out. It is definitely something that needs to be looked into. Having diarrhoea regularly isn't good for the system.

My mum was the same, very sensitive to meds, but I think the omeprazole she had been on for many years had affected her bowel.

Good luck. Let us know how you get on. xx

Chockyuk profile image
Chockyuk

So sorry Sylvi with what you’re going through, you’ve had more than your fair share!

I was on iron tablets as I was anaemic and my fatigue was very bad (the Specialist told me it’s very common with people who have autoimmune conditions, something to do with the antibodies hindering iron absorption) 🤔 Anyway the oral iron gave me terrible tummy pains so I had an infusion. It took about 2 months to kick in, but I have to say I feel so much better now energy and fatigue wise. What I would say though is my ferritin went from 12 to over 600 - then my ALT suddenly went very high after years of it being stable on Mthx. I did wonder if I had a kind of iron overload of my liver? The specialist who did the infusion said that wouldn’t the case? I ended up having to come off Mthx temporarily and my GP sent me for an abdominal ultrasound (which came back clear).

Anyway, what I’m trying to say is these things should always be used with caution just in case.

Hope you feel better very soon. 🩷

sylvi profile image
sylvi in reply toChockyuk

Thank you darling for your input it was an interesting read of what you have been through. xxx

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