Struggling still...............

[sylvi]

Morning everyone, well i am still here and i am still struggling. I hate hate hate this ruddy disease. We went to bedworth this morning and sadly i had to walk,but hubby parked close to the shops we needed so i didn't have to walk far,but it was still too much for me. During the night my tinnitus went off again,the room was spinning and i sweated really badly. Now this morning i am exhausted and oh sooo tired. So now i am sitting here with a back pillow and a pillow under my feet just to make things easy for me as i hurt that much. I think the thing that hurts the most is my face,all down my right side is puffy and sore and it affects my eyes something rotten. When we got home i just broke down and sobbed my heart out. Now one cup of earl grey later and i am a lot calmer. There is a falklands arade in coventry that my hubby and daughter are going to,i would have loved to have gone,but even i am not daft enough to think i could go. It would be suicidal for me to attempt that trip. So i will be sitting here quietly at home with the son,no doubt watching the cricket,i don't mind a bit of test cricket.

Well all my friends on here,i hope you are all having a better day than i am. If it stays nice i will go and sit in the garden. At least it is starting to look nice and i can enjoy that anyway. So all of you go and do things and please post them so i can enjoy your day albeit second hand.

Love to you all sylvia.xxxx

[trace65]

Sorry to hear you're still not feeling so good Sylvi, I hope the sun stays out for you Tracy xxxx

[rattusrattus]

i'm so sorry that you're having such an awful time Sylvi. i think the tinnitus must be mtx related because i haven't had a episode since stopping taking it.

i can relate to the sweating - i'm not even hot but it's litterally pouring out of me too, i wake up drenched and even pottering around the house has me soaked! i've just downed some paracetamol and i'm hoping it'll take my tempature down even though i feel feverishly cold!

splashing cold water or holding a cold damp towel on your face might help to take your swelling down a little bit. i get swelling with the urticaria and my face balloons - i hate it and its so embarrassing because i can hide the rash (apart from the bit on my neck) but i can't cover the swelling on my face!! i hate going outside when i'm like that because i've had some odd looks and its made me feel paranoid. its taken a week for my swelling to go down - antihistamines only help a little bit - i must have peed for england and now i feel dehydrated!!

i hope it stays sunny for you so you can catch a bit of sun in the garden. i'm lying on my bed waiting for the painkillers to kick in - i'm going to be lucky if i can keep my eyes open because they're starting to feel heavy!

i hope you feel a bit less down soon.

[sylvi in reply to rattusrattus]

I have had tinnitus for 18yrs,but it is worse now as i am in this flare. I don't have a rash,which is a blessing. My breathing isn't good either and both my shoulders hurt like someone has whacked me.

Sending you some hugs as you need them as much as i do.xxx

[Fidget02]

Sending hugs Sylvia.

My foot is still bad from my last fall.

At least we get to see more of you while you have to rest

Xx

[miss]

OH lovely hope that sun is out it is here. I am sat on sofa watching dam busters. xxx

[fastball]

Sorry to hear you feel so full of pain. the sun is out and quite warm to-day. I have been out in it until i cannt breath then i have to come in. Which is where i am now, my friend at the bottom of the garden has just informed me that his wife has had a stroke. She is back home now and on the road of recovery. Hope you get out in the sun, sending gentle hugs to help.

Chris

[sylvi in reply to fastball]

Chris, i keep going out and then coming in as the heat gets to me now,so i sit out for a little while and then i am back in. The sun is very welcome as we so badly need it.xxxx

[Hidden]

hugs on dear Sylvi.. you do sound bad.. is the sun out there?? it is here xx

[Hidden]

Sorry to hear your having yet another bad day, but happy to her that you are managing to have a bit of sun on your face. Take it easy and enjoy the cricket! xxx

[sylvi]

I didn't come indoors until nearly 8pm. I couldn't stand it during the day,but we had an early dinner as hubby and grace had a falklands parade to go to so i went out front and enjoyed the last rays of sunshine and it was very warm out there too. The ice cream man came round and i got a box of callippos and ice cream and my son came out later and brought me a cup of tea.

As long as i sit still i don't feel too bad,but it is so exhausting this flare that i wonder if it actually is,though i am sure the drs must be right. You know i have this disease for ten years and i have never felt this ill before this.

I hope you all have had a lovely day and thank you for the hugs.xxxxx

[Hidden in reply to sylvi]

Now we know what you get up to in the 'silly o'clock hours'! Your a secret ice cream eater, (to the tune of 'I'm a secret Lemonade drinker')! Just something silly that hopefully will put a smile to your face, no offence meant, just couldn't resist.

[sylvi in reply to Hidden]

You didn't offend me,more of the same and i am happy.My humour is one of the things that has kept me going. I can just imagine you at the fridge singing while getting a calippo out of the freezer.!!! Love sylvia.xxx

[pennylane]

Sorry you are feeling so bad Sylvi. Sometimes we need a good sob just to let it all out & then a good old cuppa to calm down again. Glad you got to sit out for a bit & catch some sunshine. Hope today is better for you. Sending hugs xx