Morning everyone, well i am still here and i am still struggling. I hate hate hate this ruddy disease. We went to bedworth this morning and sadly i had to walk,but hubby parked close to the shops we needed so i didn't have to walk far,but it was still too much for me. During the night my tinnitus went off again,the room was spinning and i sweated really badly. Now this morning i am exhausted and oh sooo tired. So now i am sitting here with a back pillow and a pillow under my feet just to make things easy for me as i hurt that much. I think the thing that hurts the most is my face,all down my right side is puffy and sore and it affects my eyes something rotten. When we got home i just broke down and sobbed my heart out. Now one cup of earl grey later and i am a lot calmer. There is a falklands arade in coventry that my hubby and daughter are going to,i would have loved to have gone,but even i am not daft enough to think i could go. It would be suicidal for me to attempt that trip. So i will be sitting here quietly at home with the son,no doubt watching the cricket,i don't mind a bit of test cricket.
Well all my friends on here,i hope you are all having a better day than i am. If it stays nice i will go and sit in the garden. At least it is starting to look nice and i can enjoy that anyway. So all of you go and do things and please post them so i can enjoy your day albeit second hand.
Love to you all sylvia.xxxx
Written by
sylvi
To view profiles and participate in discussions please or .
i'm so sorry that you're having such an awful time Sylvi. i think the tinnitus must be mtx related because i haven't had a episode since stopping taking it.
i can relate to the sweating - i'm not even hot but it's litterally pouring out of me too, i wake up drenched and even pottering around the house has me soaked! i've just downed some paracetamol and i'm hoping it'll take my tempature down even though i feel feverishly cold!
splashing cold water or holding a cold damp towel on your face might help to take your swelling down a little bit. i get swelling with the urticaria and my face balloons - i hate it and its so embarrassing because i can hide the rash (apart from the bit on my neck) but i can't cover the swelling on my face!! i hate going outside when i'm like that because i've had some odd looks and its made me feel paranoid. its taken a week for my swelling to go down - antihistamines only help a little bit - i must have peed for england and now i feel dehydrated!!
i hope it stays sunny for you so you can catch a bit of sun in the garden. i'm lying on my bed waiting for the painkillers to kick in - i'm going to be lucky if i can keep my eyes open because they're starting to feel heavy!
I have had tinnitus for 18yrs,but it is worse now as i am in this flare. I don't have a rash,which is a blessing. My breathing isn't good either and both my shoulders hurt like someone has whacked me.
Sending you some hugs as you need them as much as i do.xxx
Sorry to hear you feel so full of pain. the sun is out and quite warm to-day. I have been out in it until i cannt breath then i have to come in. Which is where i am now, my friend at the bottom of the garden has just informed me that his wife has had a stroke. She is back home now and on the road of recovery. Hope you get out in the sun, sending gentle hugs to help.
Chris, i keep going out and then coming in as the heat gets to me now,so i sit out for a little while and then i am back in. The sun is very welcome as we so badly need it.xxxx
hugs on dear Sylvi.. you do sound bad.. is the sun out there?? it is here xx
Sorry to hear your having yet another bad day, but happy to her that you are managing to have a bit of sun on your face. Take it easy and enjoy the cricket! xxx
I didn't come indoors until nearly 8pm. I couldn't stand it during the day,but we had an early dinner as hubby and grace had a falklands parade to go to so i went out front and enjoyed the last rays of sunshine and it was very warm out there too. The ice cream man came round and i got a box of callippos and ice cream and my son came out later and brought me a cup of tea.
As long as i sit still i don't feel too bad,but it is so exhausting this flare that i wonder if it actually is,though i am sure the drs must be right. You know i have this disease for ten years and i have never felt this ill before this.
I hope you all have had a lovely day and thank you for the hugs.xxxxx
Now we know what you get up to in the 'silly o'clock hours'! Your a secret ice cream eater, (to the tune of 'I'm a secret Lemonade drinker')! Just something silly that hopefully will put a smile to your face, no offence meant, just couldn't resist.
You didn't offend me,more of the same and i am happy.My humour is one of the things that has kept me going. I can just imagine you at the fridge singing while getting a calippo out of the freezer.!!! Love sylvia.xxx
Sorry you are feeling so bad Sylvi. Sometimes we need a good sob just to let it all out & then a good old cuppa to calm down again. Glad you got to sit out for a bit & catch some sunshine. Hope today is better for you. Sending hugs xx
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
