Hello wise ones, Just when I thought things were looking up, another issue raises its head to confuse and frustrate me. I have been on MTX for a year and leflunomide since end of March this year. I really feel like I have turned a corner, especially with my hands and feel quite optimistic for the first time in a while. Yesterday I got a call from rheumy nurse concerned about my blood test, specifically my liver. She said the results are right at the top end of what they deem as acceptable so they need to keep a close eye on the situation. When I asked what happens if it goes too high, she said I may have to come off meds for a while. In my head I’m shouting NO! NO! NO! NO! I’M JUST GETTING MY LIFE BACK! But I actually said, oh ok, that’s disappointing!
I don’t drink alcohol hardly and I eat well, in fact because I feel better I’ve been eating really healthily and shifted nearly a stone of all the weight I’ve gained in the last 18 months. I’m terrified of life without medication again, I really am. Anyone got any wisdom on this? Do they usually take you off all meds when this happens or just one at a time? I’ve got another blood test this week, fingers crossed it comes down a bit.