So this is what it is like to be really poorly

[cornflake]

Hi everyone, hope you are all doing well.

I am having a brutal lesson in what it means to be really poorly 🙄

I have had RA for 24 years and have had 21 operations including both wrists being completely fused. That was all ok because fundamentally I was still healthy and keeping fit.

I got diagnosed with CLL in Dec (chronic leukaemia) which is early stage and treatable if and when needed.

But because of this incidental diagnosis, my rheumatologist took me off my Humira until the haematologist said it was safe to continue. Which it is. But over 2 months untreated left me really struggling so I was given a big steroid shot to ‘keep me going’ until I get back on the Humira.

Which was too much for my already raw immune system and I have had the worst injection - night sweats you wouldn’t believe, uncontrollably shaking and fever.

GP gave me antibiotics (Dozycycline) which are almost as bad as the infection 🤢

I won’t ever say I feel poorly again, now I know what it actually means to be so ill!

Anybody else felt shocking on Doxycyxline?

Take care

Paula

[medway-lady]

Yes and I have Cronic Kidney Disease so know exactly how you feel: try the life threatening disease and some other ones pale into inconvenient and impacting but nevertheless a trial. It often takes a serious shock to put things into perspective. I have a friend undergoing chemo at the moment and my husband did last year. It is a very unpleasant to say the least, so I’m sending all good wishes to you and lots of courage. Xx

[girldoc in reply to medway-lady]

Hi Cornflake and Medway-lady, I can identify with you both. In addition to my MCTD (and suffering more right now from the sulfasalazine than from the disease) I have a history of ovarian cancer, speaking of putting things in perspective. Right now my cancer is in remission but this cancer type returns in the vast majority of patients. When I see the rheumatologist in the hope of getting a more tolerable drug for the MCTD, my oncologist will have to be consulted to make sure the drug is safe for me. Best of luck to you both.

[J1707-]

I’ve been on doxycycline for lymes disease OMG it caused no end of problems worst for me was the thrush too and bottom lasted 4 months best treatment I’m allergic too . A horrible time.

[Downtime]

Yes, I had to take it twice last year and hated it. It affected my stomach and I generally felt awful on it, in fact both times I didn’t quite complete the course which is I know is really bad. I don’t want it again,

[marti]

Oh my it sounds like you're having a really bad time - hope you feel better soon x

[Blackberrywine]

Oh no. So sorry you are going through such a rough time. I hope things improve for you soon.

[Pat9442]

I call Doxycycline ‘the devils drug’. Never have I been so sick as when I was given a course of that!

[janmary]

sounds awful - hope you’re better soon

[Jeremycfc]

Wishing and sending you best wishes, what you're going through must be awful, went through a bad time with health a couple of years ago, try to look forward to a better time ,all the best Jeremy

[Angels54]

Hi - I really feel it for you , I am having a bad day to day with my rheumatoid , pain in ribs , chest , boobs , chest infection , ear pain , even inside mouth hurting , I hope you get some ease soon , always lending a listening ear 🙏

[liveinwoods]

I believe that was the antibiotic I was prescribed when I had Covid and developed a sinus and lung infection. Unfortunately I had no Covid immunity despite being vaccinated and had to take that strong antibiotic. I agree- it was the worst! I sympathize. The good news is I recovered and, given time and determination, I hope you will regain your health!