Hello everyone and apologies in advance in case this turns out to be a long/ranty/weepy/mental post.
So the short version is: all last year back pain. February this year explosive flair and massive weight loss. High dose prednisone to try and curb things. Sulfasalazine which did nothing except nearly kill me. Then methotrexate. Wow! The stuff worked super quick and before I knew it I was running and jumping and all sorts ( albeit a bit grumpy due to being sober)
Then back at work come September ( I teach and have a fairly heavy managerial role at a secondary school). Four weeks in of hard graft and stress then last Friday wallop. Suddenly felt bad again and sure enough my bloods show increased CPR etc again. ( by the way still on much lower dose pred now- 10mg instead of 40!)
I had an appointment with the Rheum nurse yesterday and bloody Typical I got a trainee. I'm literally serious when I say I knew more than she did. It was a bit of a farce.
So as it stands I am supposed to up the methotrexate but so many unanswered questions - hence my plea to you guys. Because I'm not joking I reckon I'll get more sense out of just one reply from you lot who are not medical professionals than I did out of twenty minutes with the work experience girl from yesterday....
Question 1. Why now? How come everything was great and now it's suddenly just not great?
2. Will upping the meth help?? I mean it was working fine on the previous dose and then it's just ... Not...
3. Is there anything else I can do??? I have back pain - sero negative enteropathic arthritis is what they think is my diagnosis. I know that methotrexate doesn't work for this ( she didn't) but do I just have to live with that forever?
4. Will it always be this way?? This is where I get a bit maudlin. I kind of thought hurrah everything's going to be ok. And now I don't think that any more....
Thanks in advance people.