I don't know who else to talk too I've just come back from my consultant appointment which I've waited for and go nowhere if anything feel worse.
So saw a young lady think she's a registrar of my consultant explained that got no better if anything worse. She remembers seeing me in December and she said I understand why you don't want to go on methotrexate at my age it's the right thing to do. So she said I'll go and see if my consultant cam offer another drug to try.
After a 15min wait they both came in & he went on to say I have to stop the sulphazadine due to clearly not doing anything & I have to go on methotrexate. I said I don't want too as my husband & I want a baby he said well you have no choice it's that or nothing.
I took my mum along today for support as I have felt previously bullied in these appointments that there's nothing they can do to help.
My mum was asking questions about the other drugs on the market and he said before any other drugs are considered you have to go on methotrexate. He mentioned the cost of these drugs and that's why I can't go on them. He said there's a law about it which I asked to see, he said I could find it online.
By this point I'm crying as I'm so fed up of not getting anywhere, feeling like crap and that I'm feeling bullied into taking this drug. He was so unpersonal and unhelpful it was his way or no way clearly. The registrar was staying quiet which I get as she wouldn't say what she thought in front of him but its so annoying that she said I'm in the right but he's saying the opposite.
Ended up saying I want a second opinion and a referral to another hospital. I left the room sobbing as 13 weeks after a flare up I'm still nowhere to getting better. As leaving a nurse saw us and took us into a side room to ask what was up, we explained and they as 2 of them ended up talking to us that I feel bullied & have no options about getting better or about my future. She told me to make a complaint to PALS which I will be doing but also that there are other drugs out there that people take before and instead of methotrexate.
So home now no further still in pain, now feeling like its time to give up as I can't be bothered anymore to try and get better. I was hoping at my age 27 that I would get the help & treatment I need but nope
So after my rant I apologise can anyone tell me have they took another drug after their first try mine being sulphazadine that is not methotrexate?
I've now got to wait to get a referral to another hospital another 6 to 10 week wait I guess
What a crap day!