I don't post often but I read everything. This is me to date.
Since Xmas I have just got worse, I am on 20mg MTX and at present 15mg pred. The pred was given to me for PMR then 3 months later diagnoses with RA and put on the MTX. The mTX is not working one iota and th eonly time I have some relief is when they increase my pred. I manages to get down to 12mg of pred but over the last 2 months have gone back up as the pain has been unbearable. This has caused me to ring the helpline in my MTX booklet. I only reduced down to 15mg on Monday after being back up to 20mg pred for 2 weeks. I am now in agony. My neck and shoulders are all swollen again my knees and feet hurt so much I can barely move around the house. I just want to sit and cry but I have a 7yr old daughter who I home educate that depends on me though she is really good knowing when I need help bless her. I also home educate my almost 14yr old son with special needs but we have just asked for a special school for him so fingers crossed we get it and that will relieve me a little and give me a break.
I am at the rheumy on Tuesday and it can't come quick enough. Last time I spoke to my rheumy nurse she said my CRP is not reducing so they will probably change me to MTX injections but because of me flaring they may add another DMARD also.
I am really struggling with day to day stuff which is horrible as I was always a very busy mum. I love baking but can't remember the last time I covered my large table in goodies.
Today I have to try and get to the chemist for my meds and really hoping my older daughter has time to take me in the car before she goes to work or I don't know what I will do. It is in our village but down a steep hill and takes me 20 mins to get to then struggle back up the hill. My parents usually get it for me but they are lapping it up in Egypt at the moment. I can't even think about a holiday this year as it would not be much fun for the kids. My almost 14yr old says he is buying me a mobility scooter for my birthday as I walk to slow for him. I will be 50 this year and my mum will be 70 and she runs rings around me and she has had 2 new knees lol.
Anyway that's me, just wanted to let off steam about how I feel as I don't like letting my kids know especially the older ones who are married as they have their own lives to lead. My eldest has Ankylosing Spodilitis so he knows what the pain is like and the meds and he is a specialist nurse so I try not to tell him everything.
Right best try and shower if I can lift my arms to do my hair, well what's left of it cos of the MTX. Bye for now, gentle hugs and keep smiling or you will cry.
Pic of my 8 months old german shepherd being clever.