Going in for a radical Cystectomy, stopping Biologic. - NRAS

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Going in for a radical Cystectomy, stopping Biologic.

stbernhard profile image
87 Replies

Hello lovely people. My first six monthly Cystoscopy after getting the all clear from bladder cancer in January showed that the cancer was back with a vengeance. So on Monday I'll be undergoing a Radical Cystectomy. I'm OK and positive with the outlook of living without a bladder and lots of other bits . I'm lucky that I get a chance to adapt to a new life and see no reason why it should stop me from getting back to where I am today; living an active happy life. I've been off my biologic for two weeks already and will be off for at least another six weeks. Let's hope RA won't mind too much. So wish me luck with my knew life and recovery. Stay well and positive.

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stbernhard
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87 Replies
RA22345 profile image
RA22345

Keep that positivity going and very best wishes

stbernhard profile image
stbernhard in reply to RA22345

Thank you, I'll do my best.

dippyd09 profile image
dippyd09

wishing you well in your op and hoping you won’t miss the RA meds too much. Take care and keep positive.

stbernhard profile image
stbernhard in reply to dippyd09

Thank you very much.

helenlw7 profile image
helenlw7

Being positive is a good frame of mind to be in. Will be thinking of you.

stbernhard profile image
stbernhard in reply to helenlw7

Thank you!

sylvi profile image
sylvi

Good luck darling and i hope after your surgery you recover quickly sending love and hugs.

stbernhard profile image
stbernhard in reply to sylvi

Thank you Sweetheart, stay well. X

springcross profile image
springcross

I'm sorry to hear that stbernhard, what a shame, especially after getting the all clear not that long ago!! It's good to hear your positive attitude after such bad news and I hope it all goes really well for you. x

stbernhard profile image
stbernhard in reply to springcross

Thank you. I'm ready for it. Bring it on.

Mmrr profile image
Mmrr

Stay positive as you usually do and best wishes for your up and coming surgery.

stbernhard profile image
stbernhard in reply to Mmrr

Thank you. All the best. X

AgedCrone profile image
AgedCrone

Very good luck…..attitude is all with the Big C.

stbernhard profile image
stbernhard in reply to AgedCrone

Thank you. Mind over matter. It will not beat me.

AgedCrone profile image
AgedCrone in reply to stbernhard

I find with all serious conditions the trick is to say the bad bits only happen to other people…if you think it often enough it comes true.

Deeb1764 profile image
Deeb1764

Good luck with it all and positive thoughts being sent

stbernhard profile image
stbernhard in reply to Deeb1764

Thank you so much. I'll be OK I'm sure.

Amnesiac3637 profile image
Amnesiac3637

All the very best - you’re half way there with the attitude! Chins up and onwards. 😁

stbernhard profile image
stbernhard in reply to Amnesiac3637

No problems. Thank you.

KittyJ profile image
KittyJ

Best of luck Stbernhard, we are all rooting for you 🤗

stbernhard profile image
stbernhard in reply to KittyJ

Thank you very much, Kitty.

MyCLLJourney profile image
MyCLLJourney

You have such a good attitude and that helps tremendously! I have a neighbor who had to have their bladder removed as well. He is living a very active life and doesn't let it interfere with anything. He around 75 now. Prayers for you, I hope everything goes well for you and that you have a quick and successful recovery.

stbernhard profile image
stbernhard in reply to MyCLLJourney

Thank you so much for your encouraging words. Be well and happy.

Boxerlady profile image
Boxerlady

As usual I'm in awe of your positivity - you're an inspiration! Will be sending lots of positive thoughts your way 😁

stbernhard profile image
stbernhard in reply to Boxerlady

Thank you very much for your kind words. I'll Tel the anaesthetist to listen out for your positive vibes and feed them through a tube to me.😃

helixhelix profile image
helixhelix

sorry to hear that there’s another unplanned step - but sounds as if you are tacking it very well. I wish you a nimble fingered surgeon, an assiduous anaesthetist and caring nurses.

Go well…

Monkeysmum profile image
Monkeysmum

So sorry to hear that the Big C is throwing another curve ball at you, stbernhard but I see you are responding to it with your usual positivity and determination. Sending very best wishes for the surgery and the biggest hugs for your recovery 🤗

stbernhard profile image
stbernhard in reply to Monkeysmum

Thank you very much. Hugs very welcome.

Gnarli profile image
Gnarli

I wish you all the very best. You deserve nothing less.

stbernhard profile image
stbernhard in reply to Gnarli

Thank you very much for your kind words.

J1707- profile image
J1707-

good luck your a very strong person. I’m sorry it’s back I remember how positive you were last time 🙏

stbernhard profile image
stbernhard in reply to J1707-

Thank you very much. There's always a challenge round the corner.

nanny_bee71 profile image
nanny_bee71

Wishing you all the best with your procedure. My OH is currently being treated for bladder cancer and is halfway through having BCG treatment after 2 TURBT ops.

stbernhard profile image
stbernhard in reply to nanny_bee71

Thank you. I wish your husband good luck with the BCG. For most people with a T1 this will work very well. I was just a bit unlucky.

greynot profile image
greynot

All the very best with this. Your positivity is amazing and will contribute no end to your post op rehab.

I do hope your RA stays quiet through this episode.

Good luck with the new plumbing xx

stbernhard profile image
stbernhard in reply to greynot

Thank you very much for your encouraging words.

1ChLoE profile image
1ChLoE

Good luck with your surgery and wishing you a speedy recovery. Positive is the best way forward. I often find if I have something else going on, that my RA behaves

stbernhard profile image
stbernhard in reply to 1ChLoE

Thank you very much. I'll be OK I'm sure.

MaryTH profile image
MaryTH

What a great attitude you have. I am wishing you well xx

stbernhard profile image
stbernhard in reply to MaryTH

Thank you very much.

janmary profile image
janmary

sending my best wishes for surgery and recovery.

stbernhard profile image
stbernhard in reply to janmary

Thank you very much.

Kati66 profile image
Kati66

So sorry to hear you are having to fight another battle with cancer 😔😔. Hopefully the surgery will get rid of it for good 🤞🏻🤞🏻🤞🏻. Xxx

stbernhard profile image
stbernhard in reply to Kati66

That's the aim of the operation. Fingers crossed.

summer32A profile image
summer32A

My das has been without a bladder for 10 years.You will have a stoma and a leg bag.

Wishing you a successful operation x

stbernhard profile image
stbernhard in reply to summer32A

Thank you very much.

Evie3 profile image
Evie3

Hope all goes well…positive thoughts

stbernhard profile image
stbernhard in reply to Evie3

Thank you.

Plumcrumble profile image
Plumcrumble

Wishing you the very best 👍💞

stbernhard profile image
stbernhard in reply to Plumcrumble

Thank you very much.

jojoishere profile image
jojoishere

Wishing you all the best, and a speedy recovery xx

stbernhard profile image
stbernhard in reply to jojoishere

Thank you very much.

vivgibbs profile image
vivgibbs

Your amazing good luck to you ❤️🤗

stbernhard profile image
stbernhard in reply to vivgibbs

Thank you for your kind words.

Sheila_G profile image
Sheila_G

You are an inspiration. What a wonderful positivity you have. I'm sure we could all learn something from you. I wish you all the very best with your surgery and look forward to hearing more from you. God bless.

stbernhard profile image
stbernhard in reply to Sheila_G

Thank you for your very kind words, Sheila.

Summerrain14 profile image
Summerrain14

Thinking of you and always so inspired by your continuing positivity. x

stbernhard profile image
stbernhard in reply to Summerrain14

Thank you so much. I hope you are well. X

Floridalover profile image
Floridalover

What a lovely positive attitude you have. I do think it helps a lot. Good luck & best wishes. X

stbernhard profile image
stbernhard in reply to Floridalover

Thank you very much. I'll let everyone know how I got on.

Pythagorus profile image
Pythagorus

All the very best wishes to you Stbernhard. Love your positive attitude and look forward to hearing from you again after your pipe work has be rearranged and you are on the road to recovery. Tell the RA to behave 😊👍

stbernhard profile image
stbernhard in reply to Pythagorus

Ευχαριστώ πολύ. Thank you very much. I look at the RA as my kind companion, so I can concentrate on recovering from the other bit.

StormySeas profile image
StormySeas

Sending very best wishes for your op and recovery. Kindest regards

stbernhard profile image
stbernhard in reply to StormySeas

Thank you very much. It'll be interesting times ahead.

Otto11 profile image
Otto11

Sorry to hear this. I wish you well with your surgery & recovery. My friend had her bladder removed when she was in her early 20’s & is in her 60’s now. She has done well for a long time. I hope you do too x

stbernhard profile image
stbernhard in reply to Otto11

Thank you. That's encouraging. I probably won't last another 40 years, but one never knows 🤔

Poshcards profile image
Poshcards

Best of luck with everything, stay positive like you are xxx

stbernhard profile image
stbernhard in reply to Poshcards

Thank you very much 👍.

Intheend profile image
Intheend

Joining everyone in sending my best wishes for a successful op and a speedy recovery

stbernhard profile image
stbernhard in reply to Intheend

Thank you very much for your message.

Taichigirl profile image
Taichigirl

What a lovely & inspiring person you are. Best wishes for a speedy recovery xx

stbernhard profile image
stbernhard in reply to Taichigirl

Thank you 😊 for your kindness and good wishes. As soon as I'll be able to I'll restart my daily Taichi and Qigong session again. Love it.

nanapat61 profile image
nanapat61

Hope all goes very well with your op and best wishes for a full and speedy recovery!

stbernhard profile image
stbernhard in reply to nanapat61

Thank you very much for your kind message.

Bessieboo1 profile image
Bessieboo1

Hope everything goes well with your surgery and you have a speedy recovery. Sending love and hugs xx

stbernhard profile image
stbernhard in reply to Bessieboo1

Thank you very much. Had the operation yesterday and I'm doing alright.

Bessieboo1 profile image
Bessieboo1 in reply to stbernhard

That’s great news🧡. Keep us updated how you are doing. Love and hugs 🤗 💞xx

Mmrr profile image
Mmrr in reply to stbernhard

💚

Kick it's ass xxxx

stbernhard profile image
stbernhard in reply to Marionfromhappydays

I intend to. Thank you very much.

stbernhard profile image
stbernhard

Thank you very much. Had the operation yesterday and I'm doing alright.

Kags1068 profile image
Kags1068

Hi St Bernard

Apologies, as I'm very late to the post, but really wanted to wish you well. I hope everything goes to plan, and you have a smooth recovery. I'm so sorry you've had to go through all this. Best wishes xx🙂

stbernhard profile image
stbernhard in reply to Kags1068

Hi Kags, the operation went well yesterday and I'll be moved from ICU back to the urology ward soon. So all good. Thank you for your kind message.xx

Kags1068 profile image
Kags1068 in reply to stbernhard

That is good news. I'm so glad it all went well. Onwards and upwards, eh? Please keep us posted xx😊

Oscardoggy profile image
Oscardoggy

Wishing you all the very best for the future.

stbernhard profile image
stbernhard in reply to Oscardoggy

Thank you very much.

Mmrr profile image
Mmrr

...and how are you doing now ?

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