thyroid

[Jakey2020]

I have hyperparathyroidism and RA.. does anyone have this and does it cause depression and fatigue???

[Fruitandnutcase]

RA can cause fatigue, don’t know the symptoms of hyperparathyroidism but have your bones checked out as both can lead to osteoporosis.

[Jakey2020 in reply to Fruitandnutcase]

Thankyou fruitandnutcase, I do have osteoporosis due to parathyroid!! Does get me down but try to push through.. only cure is op to take it out!!! On methotrexate for RA..

[Fruitandnutcase in reply to Jakey2020]

☹️ I understand that if you have the op it can help. When I was first diagnosed I kind of hoped I had hyperparathyroidism and I could be ‘cured’ by having the parathyroids removed. I’ve just got big standard osteoarthritis so that wasn’t possible.

Are all your vitamins and minerals well up in their ranges - that might help your fatigue?

[Jakey2020 in reply to Fruitandnutcase]

I’m only on vit D and folic acid but have got some B vitamins am a bit scared of taking too much!!’

[Fruitandnutcase in reply to Jakey2020]

I’m not surprised you don’t want to take too much. I do home fingerpick tests a couple of times a year to be sure I’m not taking too much of anything.

I imagine with hyperparathyroidism you would need to be careful what vitamins etc you take. Hope you can solve your fatigue. As for depression, I think in general some aspects of life are pretty depressing at the moment but I try not to think about that too much. I no longer watch news on TV and I restrict how often I listen to it - I only hear itvif I happen to hear it on the car radio, I try to get out in the fresh air every day and find joy in simple things.

Sometimes I keep a journal and before I go to sleep I list three things I’m grateful for every night before I go to sleep. I have spells when I do that though. It’s mostly little things like something nice growing in the garden or today we saw a young stoat playing on the footpath we were walkingg on - it didn’t see us and goodness knows what it was doing but it was a joy to watch it running around back and forth without a care in the world - so far there’s been nothing so exciting as my premium bonds making me a millionaire, but doing gratitudes reminds me of how fortunate I am even on days when I don’t feel it.

[MJSlide1958 in reply to Jakey2020]

Hi, Can hyperparathyroidism make you not put on weight. I am just over 6 stone and eat properly but do not put on weight. Also I move around alot. My thyroid blood tests always normal, but I want to suggest to GP to keep checking or maybe a more detailed blood check for Thyroid problem. My neck has a goiter type shape? I really don't know what to think if it does not show in blood results?

[Doodlereggie in reply to MJSlide1958]

I think you may be right about weight as I also cannot put on weight the last couple of years and thought it might be my meds,filgotinib and biologics before that.However,saw my rheumy last week and he said I am making too much calcium,therefore something wrong with parathyroid glands,would I be open to having them removed.I asked him what he would do,and he said he would be open to this if he were me.Have kidney ultrasound on 8th sept and then to see endcrinologist to discuss.I am 78 and only weigh just under 7 stone which looks awful,as clothes just seem to hang.Had no inkling this may be because of parathyroid,but could be.I have osteoporosis due to steroids for over 20 years,and have prolia injection twice a year,so need to protect my bones!It is quite a juggling act,isn’t it.My rheumy actually said last week,it is like p—-ing in the wind which had me laughing as he is usually so proper!Anyway,I will keep posting with progress.xx

[MJSlide1958 in reply to Doodlereggie]

Good luck with everything and please keep me informed as it could be the answer to my problem. If only I could get an appointment, but also my bloods show that my thyroid is normal, but I suspect the reading needs more looking into and GP won't have it. I don't know what to do! Can't afford to go private?? Please keep in touch. Best wishes

[medway-lady]

Hypo thyroid does (Hashimoto's disease? ), but not sure about Hyper as I thought it was the opposite and caused people to become hyper (fast not slow) have you lost weight? I'm Hypo my friend hyper and she got really down. So it would be best to talk to GP. As for RA some do and some don't but if under control then it is something to talk to your team about. Both Hypo and Hyper can be treated so it might be your not being taking the right meds or or the right dose so please do do something. x

[Jakey2020 in reply to medway-lady]

Thanks for your reply, no weight loss but no meds for hyperparathyroidism just an op to take faulty gland out.

[medway-lady in reply to Jakey2020]

Then they replace with thyroxine. ? x

[Clare-NRAS Partner NRAS]

Hi Jakey2020. You may find the NRAS booklet 'Fatigue Matters' a useful resource with some tips and techniques for managing fatigue. So many people say they find the fatigue far more debilitating than the pain, so you're not alone and I'm sure many others within this community can empathize with you. If you'd like the free booklet you can order online at nras.org.uk/publications or call 01628 823524 and speak to our lovely Cheryl or email [e-mail].

[Jakey2020 in reply to Clare-NRAS]

Thankyou Claire,

[Chockyuk]

Hi 👋

I have Hypothyroid (under active) and RA. I’ve been thinking for years it was probably my RA plus the meds which was the main culprit for my fatigue. A few months ago my Rheumatologist did some thyroid and ferritin tests and turns out I have underactive thyroid and and very low iron.

I’m now on Levothyroxine and iron pills - whilst I still get fatigued, I do feel heaps better than I did.

I have also suffered from depression, but for me personally, I have other things going on that triggered it.

[Angels54]

Hi , Yes I have the same , R/A , osteoarthritis , fractures to my back , right knee giving way due to osteoarthritis, also got cys in my neck and they wanting to do operation but I’m putting off , sometimes just exhausted 👍

[Jakey2020 in reply to Angels54]

It’s draining and methotrexate upsets my stomach.. tired in a morning and general feeling not 100 percent!!!

[Doodlereggie]

I too have hyperthyroidism diagnosed last week and ra for last 23 years.Have kidney ultrasound on 8th sept and then to see endicrinologist to discuss options,but rheumy suggests having the glands removed.I do get tired easily,but am78 and some days I do too much.Will see how it goes,and make a decision when I have to,but not looking forward to surgery.However also have osteoporosis,and don’t want to break any bones either.Sometimes it gets a bit difficult,but new meds for ra 4 months in are amazing,and have reduced my crp from78 to 7 last week,which did cause a few emotional tears in rheumy office,but he put up with it,as he is so lovely! Will keep you posted.Must admit I hope to have a complete rest day today as feel a bit fatigued,joy of retirement!! Xx

[Jakey2020 in reply to Doodlereggie]

Hi Doodliereggie, what new meds are you on for RA ? I’m waiting for a second scan to find the faulty gland but don’t know when? I’ve had hyperparathyroidism for about 18 years!!!

[Doodlereggie]

hi

I am on filgotinib,or jyseleca is other name.It is a JAK inhibitor!One tablet a day instead of weekly injections which did not work for me I felt the difference after a few days and so it continued.I have had no side effects at all as far as I know.Very lucky to get funding from Enfield as I have now moved to Hertfordshire but my rheumy kept me on.Hyperparathyroid gland is new to me,having to read up on it online.Evidently I am making too much calcium,and that can make osteoporosis worse and cause kidney stones.I am ,learning as I go along.

These new group of meds are miraculous and there is a lot of info if you type in filgotinib.Others on this forum are also on it and at the beginning they took all my fears away,they were brilliant.So please ask any questions and share your journey,we are all there for you.good luck xx

[Jakey2020 in reply to Doodlereggie]

Thankyou so much, I will look up that medication.. I’m on double dose of vit D for parathyroid and have osteoporosis due to gland pulling calcium out of bones and putting it in the blood.. .. Suffer from depression which is aside effect of parathyroid probs. It all gets to me at times 😭 talking on here makes me realise I’m not alone so Thankyou !!!!