Bored of being in pain constantly...

[chlopage]

Hi lovelies

I've been pretty quiet recently, I'm struggling at the moment. I've been in agonising pain in my knees, hands, fingers for 4 weeks now (since my last steroid injections). It takes me at least an hour in the morning to get going. I'm pretty fed up as many of you can imagine.

Although I have an appointment with my rheumy nursey next week (cannot come quick enough) I bit the bullet and got an appointment with a doctor (not my gp, as she wasn't working today) for pain relief.

So I am on codeine for the next week to help me get through..

I'm also on week 12 of the sulfasalazine.. I really would have thought it would have kicked in by now? If it hasn't, what next... Another three months suffering working out the right dose of a different medication? It just feels like a never ending spiral..

- I shall share with you what my nursey said after looking at my blood results 5 weeks ago... " oooo, it looks like your arthritis is uncontrollable at the moment" - the way I feel now... I pretty much agree.

I just want to feel something else other than pain or burning.. I'm scared if the wind changes my face will perminantly look like Scrooge's ..

Much love, and best wishes to you all

Chlo

X

[Azabat]

Love back at you chlopage. It is monotonous in a truly horrible way, isn't it? I find myself counting the weeks till my rheumy appointment by mtx dose. 'There. It's Friday. Another week down. yay.' I'm in pretty much the same place, only with leflunomide and on the low end of a prednisone taper. I wish I had better encouragement than 'I hear you", but I don't know that there really is any except that I'm in the battle with you. When you're all out of hope, you can have some of mine, but don't be too surprised if I'm knocking on your door next. *wry grin* I hope you get some relief soon. xxx

Bats

[chlopage in reply to Azabat]

Thanks bats .. I appreciate your hope and I'm always around for others like yourself too!

Will let everyone know how it goes Monday, but I'm struggling to hold my breath on any improvement till then!

I keep working, keeps me going and active..and soon enough my appointment will come around!

Chlo x

[sylvi]

Chlopage darling we all understand what your feeling as we are all feeling the same. I know i am with this topsy turvey weather we are having. Uncontrolled ra is a not nice so i am sending you some Sylvi hugs .xxxx

[chlopage in reply to sylvi]

Thank you silvi darling, big gentle hugs back!

I'm not enjoying this hot cold hot cold weather either.. I don't mind if it rains constantly, or hot constantly.... But just constant weather helps!

Xx

[stbernhard]

Just don't give up hope! It took me nearly a year to get back to a normal life after diagnosis, but it will get better and you'll get it under control. Focus on that. All the very best and hugs.

[chlopage in reply to stbernhard]

I can't give up. I've been doing this for 24/26 years. I'm just totally drained by dealing with my aches and pains by myself with nobody around (apart for you special girls and boys - which I highly appreciate) to help me through the day.

I just hope we can work out a route to control it soon..

Thank you stb xx

[cathie]

Can I join the pain brigade? Having chilly shudders and an epic struggle with inanimate objects. Hospital keeps changing appointments (albeit making one 2 weeks earlier, it still makes it more difficult to plan). My husband had a hip replacement a week ago and is taking short walks and resting and generally is more capable than me. Which is good - but he hasnt got RA. It gets you in all sorts of ways.

XXX

[chlopage in reply to cathie]

Please do, jump on! Seems like everyone is struggling at the moment. It's good to hear you have the support from your husband, even with his new hip going faster! Best wishes to both of you

Chlo x

[Simone_Holly]

Lots of love, it's horrible running your life by Ra apps but I do exactly the same! Good for you for seeing your gp though, sometimes the Ra apps just can't come quick enough! Really hope things get better for you and you're in less pain soon xx

[chlopage in reply to Simone_Holly]

Thanks you, mornings are just horrendous at the moment. Growing up with it, and in and out of hospital since I was a two year old, I've grown to loathe the dreaded place. My parents used to tell me I was going to a dentist appointment because I would literally scream the house down saying no more blood! (I still do, but come to learn it's a valuable process to my health!)

X

[Simone_Holly in reply to chlopage]

Sorry to hear the mornings are bad, I hope the afternoons give you a bit of a break. It sounds like you've been dealing with this for long enough! Keep battling through and know you're not alone take care x

[nomoreheels]

Where has our crocodile wrestler gone?!! I do empathise with you though my problem is centred on my neck, horrible cervicogenic headaches again, the latest med to try (gabapentin) is doing zilch.

Sometimes the 12 weeks stated for DMARDs to reach their potential isn't reliable or even realistic, for some it can take a little longer so hang in there.

Let's hope your Rheumy nurse has a cunning plan for you. Keep us updated won't you?

[chlopage in reply to nomoreheels]

Crocodile wrestler is still around just on an over go slow, ahaha! She also appears mainly at work rather than home!

Thanks you NMH, I thought it was 12 weeks in total, so I will bare with for now. I hope nursey does too! You all be hearing from me soon!

Much love

Chlo x