Still in hospital and will be until at least monday, providing the antibiotics work that is(?) Spoke with consultant this morning who said we have a problem with antibiotic resistance. Apparently, my temp is still fluctuating and am taking two types of antibiotic to try and control it. One is cefalexin and the other a last- line antibiotic who's name I can't recall. Apparently, there's just two left after that....one is gentamycin, which they don't like using because it can damage the kidneys and the other, who's name I can't recall, I'm allergic to. As I'm prone to UTIs things don't look too good, do they.
I still don't have much of an appetite along with bouts of nausea and feel pretty grotty in general. On top of that my RA is flaring and being the eternal pessimist am feeling pretty gloomy.
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wishbone
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Thanks Mm, the doctor with the consultant (who I didn't like) just returned to update me.....she said that they've contacted both rheumy and urology to try and find the best way of treating me. The doctor hopes to hear from rheumy sometime on monday and urology a day or two later.
Oh bless you wishbone, just wanted to say hope the new antibiotics work for you. It's of no consolation to your good self but my body is resisting/giving me effects with some brands of thyroxine medication at the moment so I empathise with you when you mention what few antibiotic choices you have. Sending you some supportive wishes and thinking of you. 🤞
What a steaming pile of nastiness! I hope the cefalexin plus the last line abs do the trick pdq. Hospital food is enough to make anyone nauseous, but - come on - give the chap a break.
sorry to hear you are still unwell. I have been given clarithromycin as I have a throat infection that won’t go away. Covid has messed up our bodies good and proper! Keep fighting on there. 🌺
Only just seen you have an infection Wishbone, sending every good wish for a speedy recovery and the new antibiotic works very soon and you can go home.
Just seen this wb, I'm sorry to hear about the abx, what an absolute nuisance. I'm sure they'll find a way to get over this so try not to worry - easier said than done I know! Just as well you're in there that's for sure. Hope the nausea disappears soon and you get your appetite back. xx
Thanks for updating us wishbone. Hope you are feeling a little brighter this morning and that the antibiotics are beginning to do their stuff. Big hug 🤗
So sorry you’re still struggling wishbone but I will keep everything crossed for you that they manage to sort you out and get you back up and running again pretty damn quick. I’m certain the nausea is as a result of the antibiotics and maybe a bit of the infection sprinkled in. Do try and keep your stamina up by eating if you can. I’m sending you all my very best wishes that you start to feel better very soon. Keep us posted please.
oh sorry to hear that. Wishing you a good recovery and a plan from rheumy and urology going forward to keep you from flaring and being susceptible to UTI’s. Will keep it all crossed for you.
Sorry to hear you are so unwell.Have they given you anything for the nausea? It was the only thing that helped me when I had sepsis a few years ago. I was in hospital in France and the food was awful ,my husband used to bring me buttered French bread and boiled eggs it was all I had to eat for about 3 weeks lol. I do hope the antibiotics work for you soon and things turn around for you, sending big hugs and a prayer or two. X
Hope the antibiotics work soon for you. I found out last week I'm allergic to nitrofurantoin slow release antibiotics which I was taking for a uti, I didn't know antibiotics could be such a problem, sending best wishes 💕
Thanks for the best wishes everyone. Better news this morning.... my temp fluctuations look as if they are beginning to level off and there's a chance I can go home tommorow depending on temp readings and today's blood results. That said, the cosultant thinks it will more likely be on tuesday if everything is ok.
Very busy here in assessment. I'm currently sitting in the corridor due to a seriously ill patient being placed in the room that holds 6 beds at a push. Not the most comfortable place to be but it is what it is. Hope to get back to my bed his evening....fingers xxxx. Gave up wearing a mask, absolutely pointless with the numbers of unmasked staff and patients milling around.
Great news about your temp beginning to settle wb and hopefully they'll be good enough, along with blood results, for you to go home within next day or two. Hope you get back to your bed soon but I would still wear a mask!
Come on wishbone, let's make a positive wish to feel better together. I'm on antibiotics the same as you, having been on at least 3 lots a few weeks previously. I had a really testing time over the New Year, my Sat's had dropped to 86, so I was told to go to A & E. So there was hubby and I, 7.15pm New Year's Eve till 4pm New Year's Day Sat on my scooter him on a chair, coughing and watching the watery, weak sun come up through the a & e window. Like you I'm prone to utis as well, which I know can make you feel like someone has turned all the lights off, and you don't know where to turn. But every time my husband held my hand it made me feel like we are still here, still breathing albeit with the odd wheeze and cough along the way and I'm still fighting that Tazmanian devil who is sat on my chest determined to draw every last breath out of me!😡🤬 So just like hundreds of others on here, and just like my husband did, we can virtually hold hands to get each other through.🤞
Oh wishbone, I really feel for you. Fingers crossed that the antibiotics you are on now work and that your rheumy and urologist can work together to get you sorted out - and out of hospital too, sounds like you really do need a break from it all.
Nitrofurentoin did work for a while, but never really cleared any infection with most returning within a couple of weeks of ending a coarse. Similar thing goes for all of the common antibiotics a GP can prescribe and any others I've been prescribed in the past. Hence I'm down to using last-line antibiotics.
Can't say I've been happy with it , it was okish but not as good as Baricitininb, which is another JAK Inhibitor that I used for over 3 infection free years. I stoped taking it because it was losing effect. I've been on Rinvoq for around 8 months and have no plans extending that.
Hope you are feeling a bit better wishy. Just wanted to mention since you said you were having gentamycin that when my brother got an infection after a bowel operation he wasn't responding to any antibiotics and the doctor said we are going to give you gentamycin,..... the "king" of antibiotics .
Thanks Biofreak, that's good to know if ever they need to use it. I'm getting different messages from different consultants....yesterday's said that if the current antibiotic I'm on , along with gentamycin, doesn't work then there's no more I can do for you! 😮 However, when I asked this morning's consultant the current situation regarding antibiotics, he said although I have a number of resistant bugs in my stomach and whioh microbiology are having difficulty identyfying, they still have more tricks up their sleeve and he seemed confident they could sort me out. Think it best to just keep my fingers crossed and wait and see what happens.............
Also asked this morning's consultant why, when first admitted, that my kidneys were scanned and not my bladder when it's my bladder that's the problem. He said that they'd scanned both, but when I insisted it was only my bladder he disappeared for a minute or two and returned to repeat that it was both bladder and kidneys were scanned. Now I know very well that was not the case as I asked the radiologists when they were doing it. Sort of losing my faith the NHS.
I won't go into it now wishy but my faith in the NHS has taken a real nose dive in the last 2 years. From my personal experience over that time I've witnessed some very good care and very poor care in equal measure. The care provided isn't consistent depending on which hospital you attend. I'm not blaming the doctors and nurses because I think they are so tired of it all that they are losing their enthusiasm and passion for the job. Definitely overworked and overwhelmed and that leads to poor care. Unfortunately, for the patient, it doesn't inspire confidence. That's not to say I don't support the NHS because I do. What we are experiencing now is the result of years of underfunding and lack of appreciation in real terms by successive governments.
Feeling better thanks, my temp is still a problem and stubbornly remains in the 70's, albeit the low 70's, rather than the high ones when first admitted.
Hi, I had the same problem, with eating I found that very small food such as rice puddings in individual pots, glasses of milk when thirsty, jelly, trifle and no meat helped with the sickness. Then it was very slow for the anti-biotics (IV) to kick in after trials of differing anti-biotics. It takes a long time and continuing anti-biotics at home to finally start to feel a lot better. I hope this helps you.
Thanks for that. Nausea seems to have gone I'm glad to say. Think I was on antibiotics for 6 weeks or more when I had a serious infection a few years ago.
Hi Wishbone, I am so sorry your awful infection has led to you being in hospital and I really do hope that the antibiotics get on top of this infection. I too hope that both your urology team and rheumatology team work with you and together. I have chronic UTI’s which often led to kidney infections and put me in hospital. I am under urology and nephrology too now as the kidney infections have damaged my kidneys. I have mostly bladder infusions from urology to try and limit the infections but have at least one a month still. Sadly my rheumatology, and urology team haven’t and don’t work together and my nephrology team has managed to get the teams to work together. My urology team are lovely in all fairness and happy to work alongside all my other medical teams but my rheumatology team is not so keen to do so. I am now just waiting for my biologic to be changed. I always find that after an infection I end up in a bad flare. I am having this at the moment and my steroids have been increased to try and a settle this flare up. Thinking of you x
Hi Summer, I'm sorry to hear about the problem with infections that you've been having. I was happier wth the response I had from rheumy rather than urology when I tried to get their heads together about this sort of thing a few years ago.
Anyway, the latest from the doctors this morning is that I will be unlikely to go home until at least thursday, probably longer. I've started wearing a mask again as I'm feeling very vunerable here in the assessment ward as there's so many different people, both patients and visitors that it borders on chaotic at times! Thankfully, one of the doctors has explained my stuation regarding infections to a nurse. When I later spoke with the nurse, she said they are considering putting me in an isolation room though I doubt this will materialse.
edit.....if today's bloods are ok I may be sent home as they feel I'm at more risk in hospital.
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