Roll on summer

[Amb1xkr]

It’s now a year ago since I was diagnosed with AS although most of my inflammation and pain is in my other joints elbow, collarbone, heals, big toes that hasn’t settled down. I have taken methotrexate since April and just had my rheumatologist appointment cancelled twice.

[allanah]

So frustrating when they cancel. I hope you get to see them soon and yes, roll on summertime !!

[MadBunny]

I had mine cancelled in November and haven't been offered another one yet🙄 I haven't seen my consultant since March 2020 just before the first lockdown . And it's a year since I saw the nurse. I hope you get seen soon.

[Amb1xkr in reply to MadBunny]

Than you. I don’t know why it makes you feel better when you know we are all in the same boat 🤦‍♀️

[MadBunny in reply to Amb1xkr]

Yes it's reassuring to know you're not the only one 🤗

[sylvi]

I have not had mine cancelled yet, but don't you think the apts, alway get cancelled when we are at our worst. Hugs darling. xxxx

[Amb1xkr in reply to sylvi]

Big hugs to you too Sylvi. I hope your hubby is recovering. I just read your posts you one very brave lady. Hope today is a better day. X

[sylvi in reply to Amb1xkr]

Nothing brave about it darling I don't have a choice.xxx

[Frances_UK]

If you feel you really need to be seen then let them know. If they don't hear from you they probably assume you're coping. I had my appointment cancelled 4 times once. I told them to stop giving me appointments because the cancellations were disruptive and preventing me from seeking care elsewhere. Suddenly an appointment became available the following week.

[Amb1xkr in reply to Frances_UK]

That’s good to know. I never thought of ringing the nurse I hadn’t realised that you can just do that. I’m still on a learning curve. Love the advice and support from all you guys on this site. Thank you

[Runrig01]

Agree with Frances if struggling phone them, otherwise they assume your doing ok. I to have AS and had a similar issues with the peripheral pains. A simple increase in my MTX sorted it out from 20 to 25mg, along with a steroid injection in my shoulder.