3rd primary vaccine.. : I know we’ve all had loads of... - NRAS

NRAS

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3rd primary vaccine..

RachelD1972 profile image
32 Replies

I know we’ve all had loads of questions about this and NRAS have just done an incredibly helpful Q&A on Facebook re the results of the Octave study and 3rd vaccine. For anyone interested the link is below x

nras.org.uk/event/facebook-...

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RachelD1972 profile image
RachelD1972
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32 Replies
Lolabridge profile image
Lolabridge

It’s well worth watching.

Mmrr profile image
Mmrr

A very informative session.The big thing I took away is that for immunocompromised people ...our 3rd vaccination = other people's 2nd and so on...and we may be offered a 4th 'booster' in several months time.

Deeb1764 profile image
Deeb1764 in reply to Mmrr

That was the part I noted too and made sense as well x

allanah profile image
allanah in reply to Mmrr

The full explanation of antibodies but including the T cell memory part of the immune system was fantastic

GinnyE profile image
GinnyE

Missed it! And I'd put it in my diary

Neonkittie17 profile image
Neonkittie17 in reply to GinnyE

It’s been recorded so is available. I’m half way through watching it. x

GinnyE profile image
GinnyE in reply to Neonkittie17

Any suggestions Neonkittie17 how I can watch this, I’m not on Facebook.

Neonkittie17 profile image
Neonkittie17 in reply to GinnyE

I don’t sorry unless they post it to You Tube as well?

GinnyE profile image
GinnyE in reply to Neonkittie17

Okey dokey, thanks anyway.

allanah profile image
allanah in reply to GinnyE

You don't need Facebook, just click the link

Kerensa21 profile image
Kerensa21 in reply to GinnyE

Hi Ginny you don’t need to be on Facebook: I’m not and just clicked on above link, ignore log in and scroll down x

allanah profile image
allanah in reply to Neonkittie17

Fantastic, I was about to message you to say watch !!

Neonkittie17 profile image
Neonkittie17 in reply to allanah

Thank you. I’m just about to watch the other half of it now! Afternoon viewing. 😀

GinnyE profile image
GinnyE in reply to Neonkittie17

Just watched it. Thanks for the tips everyone. Felt a bit shame faced when I listened to the last bot when we are told not to pester our GPs or Rheumatologists 😔

Neonkittie17 profile image
Neonkittie17 in reply to GinnyE

Haven’t got there yet as only watched half way.

RachelD1972 profile image
RachelD1972 in reply to GinnyE

I noticed that. To be honest with social media etc (my surgery uses it) they could have put a notice out saying “we’re aware and working on it” . There’s been total radio silence and my gp was clueless when I rang them last week. I emailed my MP yest and told him it’s been a mess. He responded today saying he’s looking into it.

hatshepsut profile image
hatshepsut

I had my 3rd jab today, along with the flu vaccine. I was disappointed, because again it was astra zeneka. I was told this was the protocol, and I will have a booster Pfizer jab in 6 months.

Apparently this is how it's being implemented in Scotland.

Fingers crossed that I finally produce some antibodies!!!

GinnyE profile image
GinnyE in reply to hatshepsut

Good luck.

allanah profile image
allanah in reply to hatshepsut

The scientist said there is some evidence that mixing and matching types of vaccines us beneficial.... if you read the letter posted on here too it's suggestive the evidence shows its helpful too

hatshepsut profile image
hatshepsut in reply to allanah

That's precisely why I was so disappointed to get the AZ vaccine again......had hoped to get the Pfizer this time

allanah profile image
allanah in reply to hatshepsut

Ah you've had 3 astra zenicas

Neonkittie17 profile image
Neonkittie17 in reply to allanah

Didn’t that mean though not AZ as third vaccine and should be Moderna or Pfizer as that’s what I’ve read on the BBC.

Neonkittie17 profile image
Neonkittie17 in reply to hatshepsut

Hi hats, I’ve everything crossed for you. 🤞🏻

I’ve just received my email to contact the NHS and also I’ve a message to call my GP surgery back. Just a shame I can’t have the third vaccine at present as the first two didn’t work (no antibodies on the Roche test due to no B cells (Rtx)) so I’ve got to wait till B cells come back sufficiently so I can repeat both vaccines. Then a booster six months thereafter.

That’s the plan ... come home B cells, all is forgiven!

GinnyE profile image
GinnyE in reply to Neonkittie17

Glad they are in the know for you now. Stepping in the right direction x

Neonkittie17 profile image
Neonkittie17 in reply to GinnyE

Yes, they have been efficient. x

allanah profile image
allanah in reply to Neonkittie17

You still have T cells though lol

Neonkittie17 profile image
Neonkittie17 in reply to allanah

You need your B’s really. Well we don’t know how many T’s but I suspect not many Ts soon I’m likely to change to abatacept. I won’t be doing that until my B cells have returned though.

hatshepsut profile image
hatshepsut in reply to Neonkittie17

Thanks NK. I do hope that your B cells return soon. I do know exactly how you feel, it's back to shielding in all but name. I think I will have the ONS next week, or the week after......They just contact the night before. So fingers crossed I will test positive for antibodies!!!I've got everything crossed for you too x

🤞🤞

Neonkittie17 profile image
Neonkittie17 in reply to hatshepsut

I hope you do, hats! 🤞🏻💗 Thank you for your kind words. x

JEM95 profile image
JEM95

I have found all the NRAS webinars really helpful and informative. What makes them really good is that it’s explained so well - even I can understand.They also have lots of brilliant resources on their website (all RA) as well as a helpline.

Ive been a member for ages and think they do a wonderful job x

Kerensa21 profile image
Kerensa21 in reply to JEM95

Couldn’t agree more: it’s so good to have a charity which specifically represents and advocates for an often misunderstood and misrepresented disease rather than generalised ‘arthritis’ 😬 ones.

allanah profile image
allanah

Thanks x

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