PIP: I have read a few posts on here about PIP and was... - NRAS

NRAS

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PIP

julie1908 profile image

I have read a few posts on here about PIP and was wondering how you would know if it is worth applying for? Somebody said to me once do i get it and i said no because my bad days are not all the time. Some days i can do normal day to day things (within reason) but obviously as you all know when you get flares you are totally useless.

45 Replies

NRAS has some useful booklets regarding benefits- These are Benefits and RA and PIP available in hard copy or electronic through the shop. They are free to, but to keep track we need to go through the shop

How do i go on their shop?

KittyJ profile image
KittyJ in reply to julie1908

Here you go Julie

nras.org.uk/publications/

julie1908 profile image
julie1908 in reply to KittyJ

Thank you for the link..

Nadine-NRAS profile image
Nadine-NRASPartner in reply to julie1908

top right corner of the website is the shop button

Hi the good days and bad days

it is the majorty of time on the questions and criteria If more than 1 criteria apply to a question

then the majority of time can be 20% on b to 30% on c and 10% on d etc and thats over 50 %

And the care side alone there is 10 questions you could get pip on that with 2 questions alone and its not all about good bad days

The mobility is straight forward if no mental health only 1 question able to walk upto 20 metres high rate

Upto 50 metres low rate

Safely .to an acceptable standard .repeatly or a reasonable time period

Useing aids as well gets you points that can mount up

Pip self test

Although not binding it can give you an indication to apply for pip

Try this

Google

take the pip test benefits and work. And that will tell your their views on any award

And you can give email and get results emailed free to save

Or be anonymous as well and results instant

julie1908 profile image
julie1908 in reply to Ajay575

Thank you i will look at the self test first. When they say Aid’s what do they actually mean? Is it a walking stick?

Ajay575 profile image
Ajay575 in reply to julie1908

Hi aids walking stick yes but thats makes not much difference for mobility with or without a sticks award wise unless mental health also .The aids for care could be

Shoe horn

Bottle opener

Shower stool

Bath board

Toilet seat

Can opener

Grab rail

Stool for cooking

Modified cutlary

Theres lots more just an exsample

Aids usually get 2 points per question minimum points 2 but with a 4 pointer you should get an award

The self test shows you the points

Need 8 for an award

julie1908 profile image
julie1908 in reply to Ajay575

Thank you for the reply.. I scored 14 so i will try to apply.

Ajay575 profile image
Ajay575 in reply to julie1908

Good luck

julie1908 profile image
julie1908 in reply to Ajay575

Thank you

madme1 profile image
madme1 in reply to julie1908

Aids are things like walking sticks grab rails dressing aids, wheelchair or walker.

I didn’t think I would get anything. When I wrote how it effects me it reduced to me to tears. I got standard on both . It’s the little things that we adapt to make life easy that we don’t realise make a difference eg. At night I’m very stiff and use the radiator to help sit and rise. . Try base it on your worst days and say how many days are bad in general or how long a flare can last . Nothing to loose XX

julie1908 profile image
julie1908 in reply to J1707

I know how you feel some days are so frustrating they reduce you to tears.

Sorry to be a pain but i have been reading lots of different posts and information this evening on claiming PIP but where it says to make an appointment with your Rheumatologist to go through the claim with them, has anybody actually done that as i would be lucky to get an appointment with them about my RA let alone to go through a PIP claim with them.

BoneyC profile image
BoneyC in reply to julie1908

No and I don't think in the current Covid climate they would thank you for it. Hopefully you have follow up letters after appointments that you could send (if they are helpful)?

J1707 profile image
J1707 in reply to julie1908

I tried pre covid they were not interested. I was told to ask the nurse who said tell me what you want or write it yourself and I’ll copy it . I said no you know what’s wrong with me . It took the nurse 4 weeks to do.

CripLady profile image
CripLady in reply to julie1908

Hi. I asked (by email) my Advanced Nurse Practitioner to write me a support letter. Listed the aids I used for each task so she could include them. Pacing and resting, recovery time; all are important. Also include any RA letters that back up what you are saying (from first appointment). My advice would be to be as clear as possible and explain as if to a child (!). Functionality is what they are assessing. Also how long you have had RA will make a difference to award length. Good Luck.

Majority of the time criteria is very important. You may be sparkly in the summer but unable to move in the winter for example. Have a think x

benefitsandwork.co.uk/perso...

Maybe have a read on the above, Benefits & Work website. I found them very useful.

CripLady profile image
CripLady in reply to BoneyC

They are amazing…. Wish I’d known about them when I was first ill. Received pence from DLA despite being immobile for several years 🥺

Ajay575 profile image
Ajay575 in reply to BoneyC

Yeh i recommend them as well if you go down that route only about £23.00 to be a member Also i have praise for fightback4justice as well at £5.00 a month or £22.00 a month

A little word of advice when applying i wouldn't say that you have good days and bad days, I would rephrase to better days rather than good.

Hi there, I've been receiving PIP for 5 years. I think you should apply. The money is to help you deal with your condition. For example, getting a taxi instead of walking, buying better quality shoes, essential oils, pre cut vegetables to cook with, ordering Deliveroo when I'm too ill to cook, hiring a cleaner. The list goes on and these things make my life easier. When you apply you must tell them about your bad days and forget your pride - yes I have good days but the money (£60 per week) really helps on the days when I'm tired and in pain.

julie1908 profile image
julie1908 in reply to Ladyday1

Thank you for your reply i done the pip test online and scored 14 so i will apply but the only thing that concerns me is trying to get a letter from my Rheumatologist because I am not due to see them until Dec/Jan.

KittyJ profile image
KittyJ in reply to julie1908

Send copies of the letters you’ve had after appointments. I’ve never got a rheumy to do a letter specially, it’d never be done within the time frame for a start so I haven’t bothered.

julie1908 profile image
julie1908 in reply to KittyJ

Ok thank you for the information… do i download the form online?

KittyJ profile image
KittyJ in reply to julie1908

You ring them for the form, take note though that there is a time limit on sending it back and it starts from when you call. Start making notes for the form now before you call, you can look up the questions online. Send the form back signed for so you can prove they received it and make a copy to keep for yourself as you can then use it to prepare for when you have your assessment. Good luck 🤗

gov.uk/pip/how-to-claim

julie1908 profile image
julie1908 in reply to KittyJ

Lovely thank you x

KittyJ profile image
KittyJ in reply to julie1908

You’re very welcome

Ladyday1 profile image
Ladyday1 in reply to julie1908

I agree with kitty, I never received a letter either and used my appointment reports. They need confirmation of your illness but they rely more on how you present yourself at the PIP assessment.

To add to above, at my last renewal I gathered all my paperwork together before I phoned so I wasn’t overly stressed. Also when you phone up it takes about ten days to actually receive the form. Go online to find a copy of the form so you can do a rough draft before the ‘real’ one arrives. They started a NEW form this year, so make sure you source this as the questions are slightly different.

julie1908 profile image
julie1908 in reply to CripLady

Thank you for the information x

I cant find a copy online of the form to apply for PIP 🤷‍♀️

KittyJ profile image
KittyJ in reply to julie1908

It’s all online and there are various help sites too

turn2us.org.uk/T2UWebsite/m...

julie1908 profile image
julie1908 in reply to KittyJ

Thank you i am in the process of printing it off

Sorry for all these questions but i have never claimed for anything in my life so i want to make sure I get it right…With these letters i have to send with my form how far on my records should I go back? and how many should I send as there are so many of them..And also on my last appointment which was a phone consultation in Dec 2020 the report on that one says i am in remission will this affect my claim even though my hand and feet are really disfigured hence why I don’t have the full use of them.

Ajay575 profile image
Ajay575 in reply to julie1908

Hi you get different views on this even from dwp My own view

Id go back 10+ years and also put all meds from last 10+ years and all treatments and meds that did not work as well

and any courses .adaptions. physio. Ot anything

It gives them a whole picture

And this is one of the criterias they take into consideration to determine a lenth of an award

Also if applys the words

Severe

Disorders

Disease

And

Unlikely to change in the long term

julie1908 profile image
julie1908 in reply to Ajay575

Thank you for the good advice… obviously I can’t send 10 years of appointment letters so do I just randomly pick some to send.

Ajay575 profile image
Ajay575 in reply to julie1908

Hi sorry I meant just writeing down all your meds in last 10 years and any meds that did not work as well

And any teatments as well that worked or did not

Physio .ot .any pain courses etc the more the merrier

I got the citizens advice to help me with my pip form. I phoned them up before I got in touch with pip. They said to phone them up as soon as the form came through. They then gave me a phone consultation and they filled the form out online, asking me questions, then sent me the form to check before I sent it off. X

You focus more on your bad days, if it stops you doing the things that you would normally do. Also I find that other things have happened to add to the burden, things such as the recent loss of my mum, worries about covid, the affects of the jab, and medications I take. The stress of dealing with mums estate, and financial worries then fighting to get my money back when they took it off me. Isolation played a big part as well and not being able to get my appointments back on track. It all took its toll both mentally and physically. So I'm glad I fought for and got it.

julie1908 profile image
julie1908 in reply to madme1

I know how you feel i have not even applied yet but i am feeling stressed already

Get a 100 sheets of paper 😊 to practice each question first say 6 to 10 sheets per question untill your ready and sure before you even touch forms

P s mind say a question example

2d applys to you you tell them

But 2c 2b may also apply to you

Very important you tell them this so they consider them all

And go on to do same on next question

Wee tip

Think of appeal also when filling form in

As if they are going to read it as well

Your more thorough that way and youll have everything on the forms

julie1908 profile image
julie1908 in reply to Ajay575

It’s going to take me forever to write out as i am right handed and my right hand is clawed so I struggle to hold a pen for more than a few minutes at a time. Oh well

KittyJ profile image
KittyJ in reply to julie1908

You can add extra pages, this is what I did as I only have two functioning fingers on my writing hand. Writing is very slow and messy. I wrote a small bit or got my husband to and then continued onto a separate sheet which I dictated onto my iPad to print off. This seemed ok as long as it’s clear which question the answer is to.

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