Tocilizumab a wonder drug - but that doesn't make me ... - NRAS

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Tocilizumab a wonder drug - but that doesn't make me Wonder Woman!!

Brushwork profile image
13 Replies

Progress is great, after just 6 doses my RA is causing me very few and minor twinges. I am ecstatic, but caution is needed...

Due to the longed for return of Mojo, I have been decorating and catching up with all the things I badly neglected while I felt rubbish. I get busy and keep busy, I am excising more too. It is wonderful. I overdo it, I know I do, my body tells me I do. I forget that I have RA and that I am taking a pretty serious drug and both of these need to be accounted for and given due care, even when I feel as though I can conquer everything.

Achieving remission is fantabulous, wonderful, brilliant - just remember the above and I'm no spring chicken.

Go gently through the day and warm wishes

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Brushwork
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13 Replies
Lolabridge profile image
Lolabridge

Fantastic news! So pleased it’s working well for you. But take your own advice and “go gently” Wonder Woman!

Love these positive posts . Delighted for you x

Boxerlady profile image
Boxerlady

So good to hear a positive story but take it slow, girl!

Although I can well understand the temptation! 💃🤸🤹

So so pleased 🙆‍♀️

I bet it is so tempting to just blast through things.

Gives me hope , brilliant

allanah profile image
allanah

It really helped me too! I obviously go through days or times wgen i worry its coming back but overall been amazing !

Neonkittie17 profile image
Neonkittie17 in reply toallanah

💗👏🏻💗👏🏻

Wobbies profile image
Wobbies

So pleased for you. So tempting to act as if you have been cured and overdo it when you feel better. Have to be boringly sensible though .

Gnarli profile image
Gnarli

It's wonderful to get such happy and positive news and long may your improvement continue

994464 profile image
994464

I am starting on this drug today and I am so nervous .I was on enbrel for 7 years and it was a life changer for me until I was diagnosed with guillian barre Syndrome last year I was completely paralysised and had to learn how to walk again. thank God I am now wheelchair free🙌 but I will never be allowed to take anti tnf drugs again. I have been on and off steroids all year trying to control my RA. Now I am starting tocilizumab and I am more nervous than I have ever been because I suffered the very rare side affect on enbrel ....I need some reassurance 😰 I have researched it so much but it would be nice to hear some positive stories

Hezekiah profile image
Hezekiah in reply to994464

Hi, 994464 it might be better if you started a new thread with this post, as you may get more responses that way? Just a thought ⁉️😀

springcross profile image
springcross

That's really great Brushwork, I'm so pleased for you and hope it continues too. x

Neonkittie17 profile image
Neonkittie17

👏🏻💗👏🏻💗

Silverpixie profile image
Silverpixie

This is my wonder drug too after cimzia, simponi, rituximab and abatacept all had little or no effect. I still get minor flare ups and a few infections but the benefits far, far outweigh the negative aspects. I have been on tocilizumab for 4 years now. I was so thin and had lost such a lot of weight and muscle after 5 years of intense disease that when I felt better on tocilizumab I employed a personal trainer for 4 months who specialised in rehabilitation and took it slowly. I now walk miles and am a big Pilates fan, I have also gained the stone I lost so look better too (9st and 5 foot 7). Take it slowly and build core strength. Hope it carries on working for you.

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