Tocilizumab eventually started to work for me about three weeks ago - after 4 months. My blood tests bear this out; my ESR and CRP have been in the normal range for the first time in five years. The trouble is I feel absolutely shattered the whole time, and so feeble that I’m not much good to anyone, least of all myself. The Sjögren’s is worse and I am furiously itchy, especially on the scalp. My blood test showed raised erosinphilis, and I have a chesty cough (very unwelcome when one also has costochondritis). I don’t see the consultant until 18 Sept, the day before we go on a much-needed holiday. I was due to inject Tocilizumab on Saturday, but I didn’t. My instinct tells me that I might have developed an allergic reaction. I was due to inject MTX this evening, but I’ve decided to speak to my GP tomorrow. I have tried to contact the specialist Nurse but they are inundated with calls and I have t heard back from her yet.. I’m on 2.5 mg Prednisilone.
I’m not asking for medical advice, but am wondering if anyone has had a similar experience?