Cimzia...tiredness

[Jen400]

Hi all,

Im new here and first posted before christmas about a rash i had from cimzia...it had died down with thr help of prescribed antihistimine. It was lovely to get reassurance and here from u all.

I started cimzia of in oct and now im on 200mg twice a month...pen injection...i have recently started to feel very tired...a lack of energy which is not me...i have plenty of energy. I have read tiredness is a side effect but thought it would be right from the start...or maybe side effects develop with time??

I have contact my rhuemy amd they are sending me for bloods to check iron etc as im always low....but i thought i would post here to see if anyone else had experienced the same with cimiza or another biologic??

Did it come over time? Or was it instant??

Reaching out to hear from others in similar space. Thanks!

[stbernhard]

Hi Jen, CIMZIA is my wonder drug. I don't recall that side effect at all. There are so many other possible reasons like a flare, bloods etc. I hope you will find an answer soon and that CIMZIA will work you as well as it does for me. Keep us posted, please. Thank you.

[Jen400 in reply to stbernhard]

Thanks for the reply....im thinking it may be a flare and low iron as i have been getting joint and muscle pain in my left shoulder. Elbow and wrist....so hopefully it wil pass. It was injection night last night so fingers crosses will get it under control!!

[Wobbies]

I am on Cimzia and have not felt more fatigue than usual. Mind you, it hasn't worked spectacularly either, so not really affecting me either way. Hope the fatigue passes.

[Jen400 in reply to Wobbies]

Thanks for the reply....im thinking it may be a flare and low iron as i have been getting joint and muscle pain in my left shoulder,elbow and wrist....so hopefully it wil pass. It was injection night last night so fingers crosses will get it under control!!

[Wobbies in reply to Jen400]

It may be a flare as we cannot avoid those. Hopefully bloods will show something that can easily be corrected. Let us know how you get on. Take care. x

[Leics]

I know it’s silly but it could be that your anaemic and nothing to do with the Cimiza at all. You’ve said in your post that your iron levels are usually low so I’m no expert but anaemia could well be your problem and a blood test would confirm that. Tiredness is the main symptom of having low iron levels and I’m not sure having your usual injection will solve the tiredness issue you’re having perhaps it may add to it I hope not but think you need a blood test ASAP.

[MadBunny]

I've never experienced tiredness with Cimzia and I've been on it for 6 years. The blood tests showed that I was anaemic and Vit 12 deficient- common with RA I was told - so I was given an intensive course of iron supplements and I have B12 injections every 12 weeks. It worked really well. Cimzia has given me my life back and I have been in remission for a long time. I hope you enjoy the benefits I do 😁🐰

[fred42]

I have been taking Cimzia since September absolutely delighted that it works. I do feel a little moretired than normal the day that I take it but I can cope with that

Hope you can get sorted too

[Jen400]

Hi all, thank you all for your replies. Bloods came back and Iron is way down! Vit D and B are all good though. So Im on Iron supplements for bout 3 months so fingers crossed Ill be back to myself.