Update from Tuesdays hospital appointment.

[Pamelah5]

Tuesdays hospital was a little disappointing. I was called into the consultation room Diana was with me a nurse was also present.

Firstly I was asked how I got referred to the hospital from a Surrey hospital so went through that. Then I went on to say Monday day before my scan last week I received a letter from my previous consultant with diagnosis of a tumour, consultant was surprised, surprised I was told by letter as he was going to tell me himself following scan last week face-face. However he went on to say day of results they had already been sent over to Kings College hospital and that they will be contacting me shortly to have a PET scan also needing biopsies that is when I will know whether tumour is benign or malignant. I will also be booked in to have surgery called distal “Pancreatectomy” surgery taking around 4 hours if Spleen is not removed. I asked whether I could attend a closer to hospital to be told apart from Kings the only other hospital was in Basingstoke as I’m needing a specialised department “Hepatobiliary neuroendocrine” I started to ask questions to which consultant replied to ask the questions when I go to Kings College they will answer all questions. I said although it feels I have a reprieve that I felt deflated, deflated not knowing any more also terrified, the nurse who was a Macmillan nurse said she completely understood how I was feeling. Then went to see a dietician who weighed me also asked about my diet, she was impressed no advice given. I was asked to fast for 16 hours for bloods to be taken, bloods few hadn’t come across before which were done this morning, couple will take few weeks to come back. Came home feeling totally shattered.

Another waiting time, hopefully not to long.

Thank you to you all, I will keep you all updated xxx

[Neonkittie17]

🙏 Sending love and hope you aren’t waiting too long for the next appointment and tests. x

[Tinat3 in reply to Neonkittie17]

My thoughts are with you. There is nothing worse than wanting answers and feeling that you are passed from pillar to post.

Good luck xx

[Pamelah5 in reply to Tinat3]

Thank you Tinat3 for your reply, there is nothing worse hopefully won’t need to wait long xx

[sylvi]

Hugs darling, its no fun is it when you have to wait so long for answers.xxx

[Downtime]

What an awful time for you. These specialist departments are really good and I’m sure the one at Kings will be. A friend had a pancreatectomy for cancer a few years ago. I’m not sure which centre it was in London but he’s quite well now . Still, fingers crossed it might not be malignant.

Keep us updated. No good telling you not to worry but sending you lots of hugs. Hope you’re getting lots of actual hugs in spite of the wretched COVID.

X

[Pamelah5 in reply to Downtime]

Thank you Downtime, friends I’ve told have been great, and lots of prayers. I know hospitals they’re not fully back to normal so I’m hoping there may be a chance of being seen a little sooner xx

[patsymay13]

Awwww bless ya Pam , keeping fingers crossed for you xxxx

[Pamelah5 in reply to patsymay13]

Thank you Patsymay13, its the waiting hopefully not to long xxxx

[springcross]

Well I can imagine how you're feeling after that Pamela. Let's hope you don't have to wait too long, but they don't know yet whether it's malignant or not so let's hope that not is the word. I wish you all the luck in the world with this and please keep us informed. Thinking of you. xx

[Fruitandnutcase]

Oh Gosh Pamela! What can anyone say apart from we feel for your u, especially not to get the answers you were hoping for.

Lets hope the tumour is not malignant and that you don’t have to wait too long. You must feel as if you are in a nightmare.

(((Big hugs)))

[Barrister]

I hope that you get some answers very soon. It’s so horrible being left to wait. Good luck.

Clemmie

[Pamelah5 in reply to Barrister]

Thank you Clemmie, if not today might hear Monday, it’s the waiting xx

[CallMeSunny]

Dear Pamela...you must have so many thoughts and worries whirling round and round, all totally understandable. Nothing we can say except that you have our support ....we all care very much. I’m glad your dear friend was with you...please know we all are too. Thanks for updating us. 😘

[Pamelah5 in reply to CallMeSunny]

Thank you CallMeSunny,

Words cannot say how frustrating and deflated I was Tuesday and still am, slowly picking myself up, doesn’t take long for stomach to churn, thinking what it could be. To be told by the consultant that I am Very lucky it was found when it was, normally not detected until late attached to the Liver, I am so grateful to my previous consultant (Colorectal consultant) who pushed for scans to be rushed also having MRI repeated to make sure. Hopefully early next week might hear.

I will keep you all up dated, and to say I am so over whelmed with all your kind messages - Thank you all so much

Much love to you all Pamela xxx

[CallMeSunny in reply to Pamelah5]

Pleased to hear that you are able to rise above the stress at the moment, hard as it is. Well done...it takes great inner strength and courage. Don forget to keep a smile there too 😃. X

[Hidden]

In Limbo is how you are feeling . Waiting when you want action is very stressful. You’re in my thoughts and prayers x

[Ruth12345]

Thinking of you. Sending a big.

[Leics]

Wishing you lots of luck and hopefully positive results. It must be a very stressful time for you so be kind to yourself and allow others to look out for you for a bit. Keep us posted.

[rab1874]

Sending ❤️ and hugs xxx

[Monkeysmum]

One step further towards getting some answers Pamela. Hope things move along quickly for you. 🤞xx

[Zip1]

Big hugs! Stay strong! Xx

[allanah]

Good luck.hope you hear soon x

[Boxerlady]

The waiting must be hard but good to know that you'll be in expert hands and that you'll have the support of Macmillan nurses and friends like Diana. It's natural that you'll be exhausted afterwards - that sort of thing is emotionally draining apart from anything else. 💐

[Green230461]

You are in good hands. They will do their best for you at this difficult time. Waiting is harder than the answer sometimes so take care and look after yourself. God bless and good luck. 🙋🏻‍♀️

[Gnarli]

Thinking of you and hoping for a really short wait and good news. Everything crossed for you x

[Kags1068]

Hi Pamela

Thanks for keeping us updated. I'm so sorry your appt was so frustrating and tiring, and you didn't get the answers you've been waiting for so patiently.

I truly hope you get some more news soon and that things will start to move and get sorted.

Wishing you well xx🙂

[essexgirl]

Thinking of you 😘

[Deejojo]

Awww feel for u hun xxx

[Summerrain14]

Thinking of you. I really hope you don’t have too much longer to wait to be seen Kings. Much love x