In July I found out from rheumatologist end of July from blood tests I have CKD stage 3a functioning 59%.
Bloods were repeated four weeks after in August which showed a further decline now at stage 3b CKD now only functioning 40% letter also went on to ask gp for me to be referred to Renal.
This morning opened up a letter which Should have been sent to my GP and not myself from my gastroenterologist consultant regarding a MRI scan I had in June, from an updated letter scan, which says I have a ‘simple cortical cyst’ within each kidney. I also a cyst on my Spleen, also
my colon is poorly distended.
Also to say my gallbladder is not clearly identify, previous cholecystectomy ?
To which indicates maybe I’ve had gallbladder removed to which I haven’t.
This is bit much to take in 😢
Must be the cysts having something to do with decline kidneys?
I have an appointment with gp in the tomorrow morning.
I so hope I hold it together 😢
xx
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Pamelah5
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You do really need to tak to GP but I also have CKD stage 4 at 20% although I know what caused it which was a medical incident. Its really no problem some meds. need adjustment but I'm fine, a bit slower than I used to be and get tired very easily. No longer able to do some stuff but its down to the CKD not the RA.
There is no med for my AKI which became CKD over time so I do sympathise.
Oh Pamelah, I'm sorry to hear this, it all sounds very overwhelming but hopefully once you have had it all explained a bit more there are lots of things that can be done to help you. Have you got someone who can go with you to the appointment to support you? sending you 🤗
At least it has been picked up...and as Medway Lady says with careful management it may stabilise. Hope so, and hope your GP is helpful and suppostive.
So true in terms of being picked up. Sad results didn’t come to light when had MRI scan, things possibly would had been different regarding the kidney functioning. I’m hoping once cysts are dealt with kidneys won’t be damaged and functioning will increase.
Oh man sometimes I think all of these tests are crazy!!!! And the money we spend. This whole r.a thing had been confusing to me and my dr.’s. From day one. I’m taking horribly strong medications that I don’t believe work, ) on my 4 th trial med. I wish you the best and pray you get clear answers from your health care providers.
Having tests are one thing, gp’s receiving results another. I’m hoping with results being delayed things haven’t got much worse. Will know this morning where I go from here.
RA at present is under control. Occasionally playing golf, but in the beginning found quite daunting. The trauma of being involved in 3 car accidents within 18 months (non my fault) brought on RA.
I wish you well, hope they find you a suitable medication which works for you, so you’ll be pain free or least more controllable.
Weird that your gallbladder seems to have disappeared?! When I had a scan on mine (before it was removed) they found a cyst on my liver which caused me to freak out somewhat.
My GP was very reassuring though, apparently they can tell a lot by the shape/size etc whether it needs to be followed up or is anything ominous. In my case I was told that it was nothing to worry about and didn't warrant further investigation.
I hope your GP can reassure you the same - mine pointed out that if it gave cause for concern I would have been contacted and fast-tracked PDQ.
Good luck with your appointment today, hope you get the answers and reassurance you need.
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